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Table 3 Frequency of damage in the IIM patients at the end of the follow-up using the Myositis Damage Index (MDI)

From: Clinical characteristics and favorable long-term outcomes for patients with idiopathic inflammatory myopathies: a retrospective single center study in China

Damage item

Survival IIM patients‡, n = 156, (%)

Muscle severity, VAS

31(20.0)

   Muscle atrophy

7(4.7)

   Weakness

53(34.0)

   Muscle dysfunction

10(6.7)

Skeletal severity, VAS, no of test(149)#

44(29.4)

   Joint contracture

1(0.7)

   Osteopososis with fracture

4(2.8)

   Avascular necrosis

5(3.5)

   Arthropathy

9(6.3)

Cutaneous severity, VAS

31(20.0)

   Calcinosis

7(4.7)

   Alopecia

2(1.3)

   Cutaneous scarring

15(9.3)

   Poikiloderma

20(12.7)

   Lipodystrophy

4(2.6)

Gastrointestinal severity, VAS

8(5.3)

   Dysphagia

8(5.3)

   Gastrointestinal dysmotility

1(0.7)

   Gastrointestinal infarction

1(0.7)

Pulmonary severity, VAS

77(49.3)

   Dysphonia

11(7.1)

   Impaired lung function

75(48.1)

   Pulmonary fibrosis

75(48.1)

   Pulmonary hypertension

20(12.8)

Cardiovascular severity, VAS

27(17.3)

   Hypertension

26(16.7)

   Ventricular dysfunction

2(1.3)

   Angina

3(1.9)

   Myocardial infarction

3(1.9)

Peripheral vascular severity, VAS

2(1.3)

   Tissue pulp loss

0(0.0)

   Digit loss

2(1.3)

   Thrombosis

0(0.0)

   Claudication

0(0.0)

Endocrine severity, VAS

41(26.3)

   Growth failure

0(0)

   Delay in secondary sexual characteristics

0(0)

   Hirsutism

0(0.0)

   Irregular menses

2(1.3)

   Amenorrhea

0(0.0)

   Diabetes

41(26.3)

   Infertility

NA

   Sexual dysfunction

NA

Ocular severity, VAS

4(2.7)

   Cataract

2(1.3)

   Vision loss

1(0.6)

Infection severity, VAS

4(2.6)

   Chronic infection

3(2.0)

   Multiple infections

1(0.6)

Malignancy severity, VAS

4(2.6)

   Malignancy

4(2.6)

Total damage

 

   Total MDI severity of damage > 0†

112(71.8)

   Total MDI extent of damage > 0‡

115(73.7)

  1. #indicates the number after excluded the patients complicated with rheumatoid arthritis (n = 7) NA: not applicable. VAS, visual analogue scale.
  2. † Severity of damage was assessed in 9 organ systems and 2 categories of illness (infection and malignancy) and summed to provide a total MDI severity of damage score.
  3. ‡ Individual damage items were assessed in each organ system and category of illness and summed to provide a total MDI extent of damage score.