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Table 1 Number of registered ALS cases and population by Region of residence: details on Region sending ALS data to the NRRD (= Regions has sent data, −= Region has not sent data)

From: Modeling delay to diagnosis for Amyotrophic lateral sclerosis: under reporting and incidence estimates

Region of

Number

%

Population

Regions

residence

of cases

of cases

(%)

sending ALS

    

data

Abruzzo

9

0.50%

2,22%

-

Basilicata

16

0.89%

0,98%

*

Calabria

24

1.33%

3,33%

*

Campania

22

1.22%

9,65%

-

Estera

2

0.11%

-

-

Emilia Romagna

246

13.67%

7,28%

*

FVG

5

0.28%

2,05%

*

Lazio

195

10.84%

9,42%

*

Liguria

15

0.83%

2,68%

-

Lombardia

95

5.28%

16,28%

*

Marche

33

1.83%

2,58%

*

Molise

3

0.17%

0,53%

-

Piemonte

390

21.68%

7,37%

*

Puglia

148

8.23%

6,77%

*

Sardegna

3

0.17%

2,77%

*

Sicilia

5

0.28%

8,36%

-

Toscana

405

22.51%

6,18%

*

TAA

23

1.28%

1,70%

*

Umbria

18

1.00%

1,49%

-

ValledAosta

3

0.17%

0,21%

-

Veneto

139

7.73%

8,14%

*

Italy

-

100%

100%