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Table 1 Number of registered ALS cases and population by Region of residence: details on Region sending ALS data to the NRRD (= Regions has sent data, −= Region has not sent data)

From: Modeling delay to diagnosis for Amyotrophic lateral sclerosis: under reporting and incidence estimates

Region of Number % Population Regions
residence of cases of cases (%) sending ALS
     data
Abruzzo 9 0.50% 2,22% -
Basilicata 16 0.89% 0,98% *
Calabria 24 1.33% 3,33% *
Campania 22 1.22% 9,65% -
Estera 2 0.11% - -
Emilia Romagna 246 13.67% 7,28% *
FVG 5 0.28% 2,05% *
Lazio 195 10.84% 9,42% *
Liguria 15 0.83% 2,68% -
Lombardia 95 5.28% 16,28% *
Marche 33 1.83% 2,58% *
Molise 3 0.17% 0,53% -
Piemonte 390 21.68% 7,37% *
Puglia 148 8.23% 6,77% *
Sardegna 3 0.17% 2,77% *
Sicilia 5 0.28% 8,36% -
Toscana 405 22.51% 6,18% *
TAA 23 1.28% 1,70% *
Umbria 18 1.00% 1,49% -
ValledAosta 3 0.17% 0,21% -
Veneto 139 7.73% 8,14% *
Italy - 100% 100%