Table 1 Questionnaire items for the 4 additional factors pointed out by MS patients in the focus group interview
Factor | Questionnaire item | Choice |
|---|---|---|
Employment status | What was your employment status before and after the onset of MS? | Unemployed |
Part-time | ||
Full-time | ||
Income | Did your income increase or decrease after the onset of MS? | Increase |
No change | ||
Decrease | ||
Disease information | How many sources do you have for obtaining information on MS? | Â |
(Number of sources of disease information) | Â | |
Do you think that you have enough opportunities to obtain information on MS? | 0. No | |
(Self-evaluation of sources of disease information) | 1. Yes, a little | |
2. Yes, some | ||
3. Yes, quite a bit | ||
4. Yes, a lot | ||
How much do you know about MS? | 0. Nothing | |
(Self-evaluation of knowledge of disease information) | 1. A little | |
2. Some | ||
3. Quite a bit | ||
4. A lot | ||
Communication with medical staff | Are you satisfied with communication with your doctor/nurse? | 0. No |
1. Yes, a little | ||
2. Yes, somewhat | ||
3. Yes, quite a bit | ||
4. Yes, very much |