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Table 1 Self-administered questionnaires sent out before the home visit

From: Home and health in people ageing with Parkinson’s disease: study protocol for a prospective longitudinal cohort survey study

Variable Questionnaire Number of items Number of response categories (scoring) Total score range (interpretation) Time reference when rating
Activities in Daily Living (ADL) PADLS 1 5 (1–5) 1-5 (higher = worse) last month
Walking difficulties in daily life Walk-12G 12 3 (0–2): items 1–3 5 (0–4): items 4-12 0-42 (higher = worse) last two weeks
Freezing of gait FOG-Qsa 6 5 (0–4) 0-24 (higher = worse) last week (except item 3)
Fall-related self-efficacy FES-I 16 4 (1–4) 16-64 (higher = worse) -
Activity avoidance due to a risk of falling mSAFFE 17 3 (1–3) 17-51 (higher = worse) -
General self-efficacy GSE 10 4 (1–4) 10-40 (higher = better)* -
Non-motor symptoms NMSQuest 30 3: Yes/Don’t know/No Not applicable last month
Fatigue NHP-EN 3 2: Yes/No 0-100 (higher = worse)** at present
  1. *A mean score can be used as an alternative to using a summed total score.
  2. **Alternatively, those that respond yes to at least one item are considered to have fatigue.
  3. Abbreviations: FES-I Falls Efficacy Scale-International, FOG-Qsa self-administered version of the Freezing of Gait Questionnaire.
  4. GSE General Self-Efficacy Scale, NHP-EN the Energy section of the Nottingham Health Profile (items number 1, 12 and 26 in NHP).
  5. NMSQuest The Nonmotor Symptoms Questionnaire (this screening renders no total score), mSAFFE = modified Survey of Activities and Fear of Falling in the Elderly,
  6. PADLS Parkinson’s Disease Activities of Daily Living Scale, Walk-12G the generic Walk-12.