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Table 1 Self-administered questionnaires sent out before the home visit

From: Home and health in people ageing with Parkinson’s disease: study protocol for a prospective longitudinal cohort survey study

Variable

Questionnaire

Number of items

Number of response categories (scoring)

Total score range (interpretation)

Time reference when rating

Activities in Daily Living (ADL)

PADLS

1

5 (1–5)

1-5 (higher = worse)

last month

Walking difficulties in daily life

Walk-12G

12

3 (0–2): items 1–3 5 (0–4): items 4-12

0-42 (higher = worse)

last two weeks

Freezing of gait

FOG-Qsa

6

5 (0–4)

0-24 (higher = worse)

last week (except item 3)

Fall-related self-efficacy

FES-I

16

4 (1–4)

16-64 (higher = worse)

-

Activity avoidance due to a risk of falling

mSAFFE

17

3 (1–3)

17-51 (higher = worse)

-

General self-efficacy

GSE

10

4 (1–4)

10-40 (higher = better)*

-

Non-motor symptoms

NMSQuest

30

3: Yes/Don’t know/No

Not applicable

last month

Fatigue

NHP-EN

3

2: Yes/No

0-100 (higher = worse)**

at present

  1. *A mean score can be used as an alternative to using a summed total score.
  2. **Alternatively, those that respond yes to at least one item are considered to have fatigue.
  3. Abbreviations: FES-I Falls Efficacy Scale-International, FOG-Qsa self-administered version of the Freezing of Gait Questionnaire.
  4. GSE General Self-Efficacy Scale, NHP-EN the Energy section of the Nottingham Health Profile (items number 1, 12 and 26 in NHP).
  5. NMSQuest The Nonmotor Symptoms Questionnaire (this screening renders no total score), mSAFFE = modified Survey of Activities and Fear of Falling in the Elderly,
  6. PADLS Parkinson’s Disease Activities of Daily Living Scale, Walk-12G the generic Walk-12.