Table 1 Information collected and instruments used in ALS registry Swabia
ALS-case report form | Items | Source |
|---|---|---|
Symptoms | Upper, lower extremities (distal, prox.), bulbar, spastic, cerebellar and further symptoms | According to EURALS |
Localization | HSP, PLS, PMA, SMA, Bulbar, Bulbarparalysis, Flail- Arm-Syndrome, Flail- Leg-Syndrome | According to EURALS |
Diagnosis | Date, proof | According to EURALS |
Treatment | Past, current | According to EURALS |
Case-Control questionnaire | ||
Sociodemographic status | Age, gender, school education, occupation | According to EURALS |
Care / care givers | ||
Family history | Motor neuron diseases in first and second degree relatives | |
Comorbidities | List of common chronic diseases and other diseases (history) | |
Medication | Life-time history of anti-inflammatory drugs | |
Smoking | Life-time history | According to EURALS |
Alcohol consumption | Life-time history | According to EURALS |
Diet | Diet and nutritional supplements | |
Physical activity | Life-time history of sports and physical activities | According to EURALS |
Trauma | Life-time history | According to EURALS |
Injuries | Life-time history | According to EURALS |
Reproductive history (for women) | Menstruation, hormons, pregnancy, menopause, operations | According to EURALS |
Quality of life | SF 12 | M. Morfeld, I. Kirchberger, M. Bullinger [13] |
Subjective quality of life | SQoL | J. Bernheim (1999) [14] |
Neuropsychiatric tests (Hospital Anxiety and Depression Scale) | HADS | C. Herrmann-Lingen, U. Buss, R. P. Snaith (1995) [15] |
Bedside test to assess the function of the frontal brain (Frontal Assessment Battery) | FAB | Dubois et al. [16] |
Montreal Cognitive Assessment | MoCA | Nasreddine et al. [17] |
Coping Achievement Motivation Scale | AMS | J. W. B. Lang, S. Fries (2006) [18] |