Table 1 Characteristics of patients and proxy respondents at baseline and follow-up

Total

59

59

56

56

   Female (n)

41

19

40

17

Age (years)*

47.8 (8.9)

49.2 (9.0)

50.6 (9.1)

52.4 (9.9)

Years since MS onset*

12.8 (7.2)

-

14.8 (7.4)

-

Type of MS (n)

   Relapsing-remitting

28

-

26

-

   Secondary progressive

19

-

18

-

   Primary progressive

10

-

10

-

   Other

2

-

2

-

MSIS-29

   Physical scale*

42.0 (24.1)

42.8 (25.8)

45.1 (25.3)

50.0 (25.8)

   Psychological scale*

29.0 (22.6)

33.3 (22.5)

30.1 (23.5)

39.0 (24.4)

EDSS (median)

4.5

_

5.5

_

HADS (n, depression/anxiety)

   ≤ 7

42/37

_

_

_

   8–10

7/10

_

_

_

   ≥ 11

10/12

_

_

_

BRB-N (n)

   0 abnormal scores

46

_

_

_

   1–2 abnormal scores

6

_

_

_

   ≥3 abnormal scores

5

_

_

_

   Missing

2

_

_

_