Perceived needs and satisfaction with care in people with multiple sclerosis: A two-year prospective study

BMC Neurology

Table 2 Perceived need and satisfaction with care of PwMS (n = 219) on inclusion

Dimensions	Applicable/Perceived need, %	Satisfied, %*
Diagnosis-related information
Want early diagnosis	100	84†
Content with situation in which the diagnosis was received	100	57
Information regarding the disease
Physicians	100	81
Nurses	86	93
Occupational therapists	37	70
Physiotherapists	52	72
Welfare officers	37	67
Psychologists	13	54
Others	28	77
Art of care
Engagement/sympathy from staff
Physicians	100	82
Nurses	89	88
Occupational therapists	34	75
Physiotherapists	50	85
Welfare officers	35	76
Psychologists	13	56
Others	26	79
Kind treatment
Physicians	100	90
Nurses	90	96
Occupational therapists	36	86
Physiotherapists	53	88
Welfare officers	35	85
Psychologists	13	67
Others	30	81
Accessibility
Physicians	84	65
Nurses	85	81
Occupational therapists	28	78
Physiotherapists	44	77
Welfare officers	26	71
Psychologists	9	55
Others	23	77
Technical quality of care
Contact with all expertise needed	98	82
Finances	98	25
Availability
Physiotherapy	61	65
Occupational therapy	41	66
Rehabilitation periods	42	58
Assistive devices	45	80
Workplace adaptation	28	70
Home adaptation	34	79
Transportation service for the disabled	42	89
Home help/Personal assistants	21	66
Psychosocial support/counselling	38	50
Information on social insurance/vocational rehabilitation	40	29
Continuity
Meeting the same staff	98	88
Participation in planning care
Want to participate in planning care	95	85†
Have participated in planning care	79	63
Efficacy/outcomes of care
Hospital inpatient care	48	80
Hospital outpatient care	97	89
Primary care	52	67
Rehabilitation periods	32	78

ISSN: 1471-2377