Participants | Outcome | Outcome measure |
---|---|---|
Patients | Primary outcome measure | Â |
 | Social participation – performance of occupations | Canadian Occupational Performance Measure, performance score (COPM-performance) [18-20] |
 | Secondary outcome measures |  |
 | Social participation- satisfaction with occupational performance | Canadian Occupational Performance Measure, satisfaction score (COPM-satisfaction) [18-20] |
 | Fatigue impact and severity | Checklist Individual Strength - subscale Fatigue (CIS-Fatigue) [21] |
 | Physical endurance | 6-Minute Walking Test [22] |
 | Activity engagement | |
 | Self-efficacy | General Self-Efficacy Scale [26] |
 | Mood | Hospital Anxiety and Depression Scale (HADS) [25] |
 | Resource utilization | Self-developed resource utilization questionnaire |
 | Health-related quality of life | Health-related Quality of Life: Short Form 36 (SF-36) [28] |
Caregiver(s) | Perceived caregiver burden | Zarit Burden Interview (ZBI) [27] |
 | Objective caregiver burden | Self-developed scale for objective care burden questionnaire; amount of care (hours) |