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Table 2 Included studies basic characteristics and sample

From: Behavioural interventions for people living with adult-onset primary dystonia: a systematic review

Citation

Setting (Country and location)

Design

Sample size (N=)

Mean age (Years)

Gender (m) (f)

Ethnicity

AAOa (Years)

MDb (Years)

PM/Tc

Bell and Thompson [18]

Golf course

CS

1 (case study)

40y

1 m

Caucasian/“White”

NR

3y

NR

Bell et al. [21]

USA, golf courses

CS

N = 3

51y

3 m

Caucasian

NR

NR

NR

Bell et al. [22]

USA, golf courses

CS

N = 4

51y

4 m

Caucasian

NR

NR

NR

Boyce et al. [23]

Australia, Physiotherapy out-patients clinic & and at home.

pRCT

N = 20 intervention group N = 9; control group N = 11

57.8y

70 % f; 30 % m

NR

NR

10.2y

Botulinum toxin therapy injections

Cottraux et al. [25]

unspecified,

pRCT

N = 15 Multimodal treatment N = 9; (EMG) feedback N = 4

36y

27 % f, 73 % m

NR

NR

3.6y

psychotherapy

Faircloth and Reid [24]

England, unspecified

CS

1

36y

1 m

NR

26y

10y

Botulinum Toxin therapy injections

Greenberg [26]

England, London, participants’ homes

CLs

4

52y

25 % f; 75 % m

NR (1 said to be West Indian)

49y

3.5y

NR

Sharpe [28]

Unspecified, hospital

CS

1

51y

1 m

NR

50/51y

Around 11 months

‘tetrabenazine and imipramine’

Wieck et al. [27]

London, England, Neurology clinic, participants’ homes

RCT

N = 23 Intervention group N = 11; Control group N- = 12

intervention group: 52y control group: 49y

35 % f; 65 % m

NR

NR

Intervention 10y; control 13y

Psychotherapy, biofeedback and drugs.

  1. CS case studies, pRCT pilot randomised controlled trial, CLs clinical study, NR not reported, EMG electromyography
  2. aAverage age of onset in years. bMean duration of condition, cPrevious medications/treatments