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Table 1 Neurology and specialist palliative care service information in the eight centres in the UK

From: How integrated are neurology and palliative care services? Results of a multicentre mapping exercise

Characteristics

Condition

Neurology service

Palliative care service

Catchment area (square miles)

MS

Range: 39– 5,840

Range: 39 – 1,008

MND

Range: 39 – 5,840

Parkinsonism

Range: 39 – 6,525

Population of catchment area (number)

MS

Range: 142,000 – 3,500,000

Range: 235,000 – 1,398,000

MND

Range: 142,000 – 3,500,000

Parkinsonism

Range: 300,000 – 3,500,000

Number of patients seen annually

MS

Range: 457 – 5,018 (3510 outpatient + 1508 inpatient)

Range: 0 - 5

MND

Range: 10 - 400

Range: 9/12 - 88

Parkinsonism

Range: 148 (appointments per year) – 1,558 (161 inpatients, 1397 outpatients)

Range: 3 - 25

Total – not disease specific

 

Range: 550 – 2,298

Service provided

MS

Frequent clinics. Some sites nurse-led telephone helplines and home visits.

Various setting; hospital, community and hospice. Most across settings

MND

Clinics (focus on holistic, multi-professional service).

Parkinsonism

Clinics (inclination to work multi-professionally). Some links to community

Integration of the two services

MS

Limited – most sites no joint visits, or formal links. Some informal relations, few sites joint clinics.

MND

Joined - most sites joint visits or other (formal) relationships

Parkinsonism

Limited to Mixed – most sites no joint visits or other formal relationships.

Disease dependent – best for MSA/PSP