From: Content validity and clinical meaningfulness of the HFMSE in spinal muscular atrophy
HMFSE Item | HMFSE activities | Answers | Group 1 | Group 2 | Group 3 | Group 4 |
---|---|---|---|---|---|---|
1 | Able to sit on chair or with legs off bed with or without hand support | Sitting on normal school chair or public spaces (stools in restaurant) | â—Ź | â—Ź | â—Ź | â—Ź |
Sitting on toilet | â—Ź | â—Ź | â—Ź | |||
Sitting in car | â—Ź | |||||
Independence out of the house | â—Ź | â—Ź | ||||
Dress by herself/himself | â—Ź | |||||
2 | Able to sit on floor cross legged or legs stretched in front | Play on floor with siblings | â—Ź | â—Ź | â—Ź | â—Ź |
Sit on lounge chair, deck-chair | â—Ź | â—Ź | ||||
Picnic | â—Ź | â—Ź | ||||
Travel with less equipment | â—Ź | |||||
Inclusion in activities | â—Ź | |||||
3 | Able to bring hands to face at eye level | Wash face | â—Ź | â—Ź | â—Ź | â—Ź |
Brush and style | â—Ź | â—Ź | â—Ź | â—Ź | ||
Eat | â—Ź | â—Ź | ||||
Put on eye glasses | â—Ź | â—Ź | â—Ź | |||
Answer telephone | â—Ź | |||||
Blow nose | â—Ź | |||||
4 | Able to bring hands to head | Scratch head | â—Ź | â—Ź | â—Ź | â—Ź |
Wash, brush, style hair | â—Ź | â—Ź | â—Ź | |||
Put on hat | â—Ź | â—Ź | â—Ź | |||
Dress upper body | â—Ź | â—Ź | ||||
5 | Roll to side | Sleep by myself in my own room | â—Ź | â—Ź | ||
Caregiver does not have to wake up to turn him/her | â—Ź | â—Ź | â—Ź | |||
Help during dressing lying down | â—Ź | â—Ź | ||||
Not having to turn head to see | â—Ź | |||||
6-7-8-9 | Roll | Play | â—Ź | â—Ź | ||
Sleep well | â—Ź | â—Ź | ||||
Sunbathe | â—Ź | â—Ź | ||||
Experience space | â—Ź | â—Ź | ||||
Reach for something at sides when lying down | â—Ź | â—Ź | ||||
10 | Able to lye down from sitting | Independence: lye down and rest when tired | â—Ź | â—Ź | â—Ź | â—Ź |
Fun movement when falling | â—Ź | â—Ź | ||||
Rest on the back | â—Ź | |||||
Safety: Fall in a controlled way (avoid head trauma) | â—Ź | |||||
11 | Able to raise head when lying prone | Turn head react to stimulus, visual exploration of surroundings | â—Ź | â—Ź | â—Ź | |
Read a book | â—Ź | â—Ź | â—Ź | |||
Not be afraid of choking | â—Ź | |||||
Watch TV | â—Ź | â—Ź | ||||
On beach not get sand in face | â—Ź | |||||
12-13 | Able to prop on forearms or extend arms | Read a book | â—Ź | â—Ź | â—Ź | |
Watch TV | â—Ź | â—Ź | â—Ź | |||
Stretch back | â—Ź | |||||
Sun bathe | â—Ź | |||||
14 | Able to sit up from lying | No need for assistant | â—Ź | â—Ź | â—Ź | |
Wake up and not have to wait for someone to sit me up | â—Ź | â—Ź | â—Ź | â—Ź | ||
Independence | â—Ź | â—Ź | ||||
Sit up and drink at night | â—Ź | â—Ź | ||||
15 | Able to four-point kneel | Play like an animal in school | â—Ź | â—Ź | â—Ź | |
Hiding | â—Ź | |||||
Be able to fit under small spaces | â—Ź | |||||
16 | Able to crawl | Move around | â—Ź | â—Ź | â—Ź | â—Ź |
Experience space | â—Ź | â—Ź | ||||
Go get objects | â—Ź | â—Ź | ||||
Play on floor | â—Ź | â—Ź | ||||
17 | Lift head from supine | Change head position | â—Ź | â—Ź | â—Ź | |
Drink at night | â—Ź | â—Ź | ||||
Read | â—Ź | |||||
Watch TV | â—Ź | |||||
Check the clock or alarm | â—Ź | |||||
18 | Stand with support | Use toilet standing (boy) | â—Ź | â—Ź | â—Ź | |
Use full length mirror, perceive body dimensions and proportions | â—Ź | â—Ź | ||||
Shower properly | â—Ź | |||||
Climb in car | â—Ź | |||||
Use kitchen burners, cook | â—Ź | |||||
19 | Stand without support | Public spaces: wait for bus, stand in cue | â—Ź | |||
Cook | â—Ź | |||||
Use normal sink | â—Ź | |||||
Dress | â—Ź | |||||
Reach something on a shelf | â—Ź | |||||
20 | Able to walk | Freedom | â—Ź | â—Ź | â—Ź | |
Go where and when you please | â—Ź | â—Ź | â—Ź | |||
Get to places | â—Ź | â—Ź | â—Ź | |||
Not to have to rely on wheelchair batteries | â—Ź | |||||
21-22 | Able to flex hip from supine | Dress (pants, socks) | â—Ź | â—Ź | â—Ź | â—Ź |
Scratch legs, kill mosquito | â—Ź | â—Ź | ||||
Change position | â—Ź | |||||
23-24-25-26 | Able to half kneel | Pick up object on floor | â—Ź | â—Ź | ||
Tie shoe laces | â—Ź | â—Ź | ||||
Put away object on low surfaces | â—Ź | |||||
Pet a dog | â—Ź | |||||
Play | â—Ź | |||||
Make a proposal | â—Ź | |||||
Kneel in church | â—Ź | |||||
Talk with a kid | â—Ź | |||||
27 | Able to go from standing to sitting | Not get hurt when falling or not fall in an embarrassing way | â—Ź | â—Ź | ||
Sit on grass or sand | â—Ź | â—Ź | â—Ź | |||
Pet a dog | â—Ź | |||||
Sit beside a friend in same position/play on floor | â—Ź | â—Ź | ||||
Pick up something from floor | â—Ź | â—Ź | ||||
28 | Able to squat | Sit when needed | â—Ź | â—Ź | ||
Pick up objects on floor | â—Ź | â—Ź | â—Ź | |||
Pee | â—Ź | â—Ź | ||||
Tie shoes | â—Ź | |||||
Pull up trousers | â—Ź | |||||
29 | Able to jump | Have fun, play | â—Ź | â—Ź | â—Ź | â—Ź |
Dance, gymnastics | â—Ź | â—Ź | ||||
Avoid obstacles | â—Ź | â—Ź | â—Ź | |||
Normality | â—Ź | â—Ź | ||||
Go to friends’ home regardless of where they live | ● | ● | ● | |||
Stay and live in my own home | â—Ź | |||||
30-31-32-33 | Go up and down stairs | Absence of barriers | â—Ź | â—Ź | â—Ź | â—Ź |
Normality | â—Ź | â—Ź | ||||
Go to friends’ home regardless of where they live | ● | ● | ● | |||
Stay and live in my own home | â—Ź |