From: Stability and relative validity of the Neuromuscular Disease Impact Profile (NMDIP)
Variable | Total sample N = 702 | Test-retest sample N = 185 | p-value |
---|---|---|---|
Gender (%) | |||
Female | 350 (50) | 105 (57) | 0.095^ |
Male | 352 (50) | 80 (43) | 0.095^ |
Age | 0.024## | ||
Median (IQR) | 61 (21) | 57 (18) | |
Range | 19–92 | 19–92 | |
Year since diagnosis | 0.003## | ||
Median (IQR) | 7 (11) | 10 (14) | |
Range | 0–65 | 1–64 | |
Extent of limitations | 0.329## | ||
Median (IQR) | 5 (4) | 6 (4) | |
Range | 1–10 | 1–10 | |
Quality of life (WHOQOL-bref) | 0.129## | ||
Median (IQR) | 4 (1) | 4 (1) | |
Range | 1–5 | 1–5 | |
Relationship status (%) | |||
Relationship (married/partnership) | 515 (73) | 135 (76) | 0.910^ |
Single (unmarried/widowed/divorced) | 186 (27) | 45 (24) | 0.549^ |
Educational level (%) | |||
Primary school/vocational training | 235 (33) | 57 (31) | 0.492^ |
Secondary school/vocational training | 270 (38) | 81 (44) | 0.188^ |
Higher education /vocational training | 161 (23) | 37 (20) | 0.394^ |
University | 28 (4) | 8 (4) | 0.837^ |
Employment status (more answers possible) (%) | |||
Following a training or study | 36 (5) | 12 (7) | 0.468^ |
Employment (part-time or full time) | 173 (25) | 43 (23) | 0.693^ |
Voluntary work (part-time or full time) | 42 (6) | 15 (8) | 0.294^ |
(Partially) retired due to NMD | 213 (30) | 67 (36) | 0.126^ |
Housewife/househusband | 171 (24) | 55 (30) | 0.136^ |
Retired due to age | 244 (35) | 45 (24) | 0.007^ |
NMD category (%) | |||
Motor neuron disorder (MND) | 43 (6) | 20 (11) | 0.027^ |
Muscle disorder (MD) | 154 (22) | 69 (37) | <0.001^ |
Junction disorder (JD) | 234 (33) | 66 (36) | 0.549^ |
Peripheral nerve disorder (PND) | 271 (39) | 30 (16) | <0.001^ |