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Table 1 Patient characteristics of total sample and test-retest sample

From: Stability and relative validity of the Neuromuscular Disease Impact Profile (NMDIP)

Variable

Total sample N = 702

Test-retest sample

N = 185

p-value

Gender (%)

 Female

350 (50)

105 (57)

0.095^

 Male

352 (50)

80 (43)

0.095^

Age

  

0.024##

 Median (IQR)

61 (21)

57 (18)

 

 Range

19–92

19–92

 

Year since diagnosis

  

0.003##

 Median (IQR)

7 (11)

10 (14)

 

 Range

0–65

1–64

 

Extent of limitations

  

0.329##

 Median (IQR)

5 (4)

6 (4)

 

 Range

1–10

1–10

 

Quality of life (WHOQOL-bref)

  

0.129##

 Median (IQR)

4 (1)

4 (1)

 

 Range

1–5

1–5

 

Relationship status (%)

   

 Relationship (married/partnership)

515 (73)

135 (76)

0.910^

 Single (unmarried/widowed/divorced)

186 (27)

45 (24)

0.549^

Educational level (%)

 Primary school/vocational training

235 (33)

57 (31)

0.492^

 Secondary school/vocational training

270 (38)

81 (44)

0.188^

 Higher education /vocational training

161 (23)

37 (20)

0.394^

 University

28 (4)

8 (4)

0.837^

Employment status (more answers possible) (%)

 Following a training or study

36 (5)

12 (7)

0.468^

 Employment (part-time or full time)

173 (25)

43 (23)

0.693^

 Voluntary work (part-time or full time)

42 (6)

15 (8)

0.294^

 (Partially) retired due to NMD

213 (30)

67 (36)

0.126^

 Housewife/househusband

171 (24)

55 (30)

0.136^

 Retired due to age

244 (35)

45 (24)

0.007^

NMD category (%)

 Motor neuron disorder (MND)

43 (6)

20 (11)

0.027^

 Muscle disorder (MD)

154 (22)

69 (37)

<0.001^

 Junction disorder (JD)

234 (33)

66 (36)

0.549^

 Peripheral nerve disorder (PND)

271 (39)

30 (16)

<0.001^

  1. ^Difference in proportions test, ##Mann-Whitney U test. Interquartile range (IQR) = Q3-Q1