Table 2 Demographic information of KUMC ALS clinical patients. Baseline is defined as the time of a patient’s first recorded ALSFRS-R score at KUMC

Number of patients

352

Percent female / Male

43/ 57

Percent Caucasian / Non-Caucasian

89/ 11

Percent limb onset / Bulbar / Other

65/ 27/ 8

Percent using riluzole Yes / No / NA

63/ 35 / 2

Percent survived during follow up

69

Median time from baseline to last record, months (IQR)

7.1 (17.7)

Median age at baseline (IQR)

65.3 (11.2)

Median number of months from onset to baseline (IQR)

19.0 (28.1)

Median baseline FVC percent predicted (IQR)

70.0 (32.5)

Median BMI at baseline (IQR)

26.4 (7.23)

Median number of ALSFRS-R assessments (IQR)

3 (4)

Median baseline ALSFRS-R (SD)

35.5 (10.0)