Table 1 Characteristics of Duchenne Registry Respondents (Males with Duchenne and ≤ 35 years old) who completed the Corticosteroid Module)
Characteristic | Number of Responses and Number of Patients | |
|---|---|---|
| Â | 1627 from 1538 males with Duchenne | 159 from 154 males with Becker |
Age (years) | ||
 Mean (SD) | 11.3 (6.5) | 21.8 (16.2) |
 Median (1st quartile, 3rd quartile) | 10 (7, 15) | 17 (9, 34) |
Age Category n, (%) | ||
  ≤ 4 years old | 200 (12.3) | 8 (5.1) |
 5–9 years old | 544 (33.4) | 35 (22.3) |
 10–14 years old | 470 (28.9) | 24 (15.3) |
 15–20 years old | 232 (14.3) | 19 (12.1) |
 21–24 years old | 99 (6.1) | 15 (9.6) |
 25–29 years old | 54 (3.3) | 9 (5.7) |
 30–35 years old | 28 (1.7) | 11 (7.0) |
  > 35 years old | NA | 33 (21.0) |
Race n, (%) | ||
 Caucasian | 1406 (87.2) | 140 (89.7) |
 Asian | 83 (5.1) | 6 (3.8) |
 Other | 72 (4.5) | 5 (3.2) |
 Black | 29 (1.8) | 3 (1.9) |
 Native American | 18 (1.1) | 2 (1.3) |
 Pacific Islander | 4 (< 1) | 0 |
Ethnicity n, (%) | ||
 Not Latino/Hispanic | 1392 (90.2) | 143 |
 Latino/Hispanic | 152 (9.8) | 7 |
Ambulatory Status n, (%) | N = 1505 | N = 140 |
 Child is an infant/toddler and has not yet taken his/her first steps | 11 (0.7) | 0 |
 Ambulatory | 892 (59.3) | 107 (76.4) |
  Usually/always walk without help or mobility devices | 645 (42.9) | 90 (64.3) |
  Sometimes need help from a mobility device | 247 (16.4) | 17 (12.1) |
 Nonambulatory | ||
  Use a wheelchair/other mobility device and rarely/ never walk | 602 (40.0) | 33 (23.6) |