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Table 1 Characteristics of Duchenne Registry Respondents (Males with Duchenne and ≤ 35 years old) who completed the Corticosteroid Module)

From: Variability and trends in corticosteroid use by male United States participants with Duchenne muscular dystrophy in the Duchenne Registry

Characteristic Number of Responses and Number of Patients
  1627 from 1538 males with Duchenne 159 from 154 males with Becker
Age (years)
 Mean (SD) 11.3 (6.5) 21.8 (16.2)
 Median (1st quartile, 3rd quartile) 10 (7, 15) 17 (9, 34)
Age Category n, (%)
  ≤ 4 years old 200 (12.3) 8 (5.1)
 5–9 years old 544 (33.4) 35 (22.3)
 10–14 years old 470 (28.9) 24 (15.3)
 15–20 years old 232 (14.3) 19 (12.1)
 21–24 years old 99 (6.1) 15 (9.6)
 25–29 years old 54 (3.3) 9 (5.7)
 30–35 years old 28 (1.7) 11 (7.0)
  > 35 years old NA 33 (21.0)
Race n, (%)
 Caucasian 1406 (87.2) 140 (89.7)
 Asian 83 (5.1) 6 (3.8)
 Other 72 (4.5) 5 (3.2)
 Black 29 (1.8) 3 (1.9)
 Native American 18 (1.1) 2 (1.3)
 Pacific Islander 4 (< 1) 0
Ethnicity n, (%)
 Not Latino/Hispanic 1392 (90.2) 143
 Latino/Hispanic 152 (9.8) 7
Ambulatory Status n, (%) N = 1505 N = 140
 Child is an infant/toddler and has not yet taken his/her first steps 11 (0.7) 0
 Ambulatory 892 (59.3) 107 (76.4)
  Usually/always walk without help or mobility devices 645 (42.9) 90 (64.3)
  Sometimes need help from a mobility device 247 (16.4) 17 (12.1)
 Nonambulatory
  Use a wheelchair/other mobility device and rarely/ never walk 602 (40.0) 33 (23.6)