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Table 1 Characteristics of Duchenne Registry Respondents (Males with Duchenne and ≤ 35 years old) who completed the Corticosteroid Module)

From: Variability and trends in corticosteroid use by male United States participants with Duchenne muscular dystrophy in the Duchenne Registry

Characteristic

Number of Responses and Number of Patients

 

1627 from 1538 males with Duchenne

159 from 154 males with Becker

Age (years)

 Mean (SD)

11.3 (6.5)

21.8 (16.2)

 Median (1st quartile, 3rd quartile)

10 (7, 15)

17 (9, 34)

Age Category n, (%)

  ≤ 4 years old

200 (12.3)

8 (5.1)

 5–9 years old

544 (33.4)

35 (22.3)

 10–14 years old

470 (28.9)

24 (15.3)

 15–20 years old

232 (14.3)

19 (12.1)

 21–24 years old

99 (6.1)

15 (9.6)

 25–29 years old

54 (3.3)

9 (5.7)

 30–35 years old

28 (1.7)

11 (7.0)

  > 35 years old

NA

33 (21.0)

Race n, (%)

 Caucasian

1406 (87.2)

140 (89.7)

 Asian

83 (5.1)

6 (3.8)

 Other

72 (4.5)

5 (3.2)

 Black

29 (1.8)

3 (1.9)

 Native American

18 (1.1)

2 (1.3)

 Pacific Islander

4 (< 1)

0

Ethnicity n, (%)

 Not Latino/Hispanic

1392 (90.2)

143

 Latino/Hispanic

152 (9.8)

7

Ambulatory Status n, (%)

N = 1505

N = 140

 Child is an infant/toddler and has not yet taken his/her first steps

11 (0.7)

0

 Ambulatory

892 (59.3)

107 (76.4)

  Usually/always walk without help or mobility devices

645 (42.9)

90 (64.3)

  Sometimes need help from a mobility device

247 (16.4)

17 (12.1)

 Nonambulatory

  Use a wheelchair/other mobility device and rarely/ never walk

602 (40.0)

33 (23.6)