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Table 1 Participant responses to telephone survey about CHAPS (n = 28)

From: Stakeholder perceptions of components of a Parkinson disease care management intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS)

Pillars and Specific Questions Strongly Disagree Disagree
n (%)
Not Sure
n (%)
Agree
n (%)
Strongly Agree
n (%)
Don’t recall
n (%)
Medication Self-management (Pillar 1a)
 I know how to take my PD medications. 1 (3.6) 24 (85.7) 3 (10.7)
 I know what my PD medications are for. 1 (3.6) 2 (7.1) 23 (82.1) 2 (7.1)
 I know the side effects of my PD medicationsb. 2 (7.7) 3 (11.5) 20 (76.9) 1 (3.8)
Use of Dynamic Patient-centered Record (Pillar 2)
 The Siebens Health Care Notebook that the CHAPS Nurse Care Manager mailed to me, helps my doctors, team, and me to take better care of myself. 9 (32.1) 7 (25.0) 8 (28.6) 2 (7.1) 2 (7.1)
 I felt my CHAPS Assessment Summary, located in the back of my personal health care notebook, was useful. 5 (17.9) 8 (28.6) 4 (14.3) 1 (3.6) 10 (35.7)
 I felt My Action Plan, located in my personal health notebook, was useful. 4 (14.3) 10 (35.7) 3 (10.7) 11 (39.3)
Parkinson disease Specialist Follow-up (Pillar 3)
 I know when to follow up with my PD doctor. 2 (7.1) 2 (7.1) 24 (85.7)
Parkinson disease Red Flags (Pillar 4)
 I know symptoms I should watch for to monitor my Parkinson disease (PD) condition. 1 (3.6) 2 (7.1) 23 (82.1) 2 (7.1)
 I know what I should do if my PD symptoms get worse. 2 (7.1) 1 (3.6) 24 (85.7) 1 (3.6)
Additional questions addressing the Helpfulness of Nurse Care Manager
 I felt I could talk to my CHAPS Nurse Care Manager about my condition. 2 (7.1) 3 (10.7) 19 (67.9) 3 (10.7) 1 (3.6)
 The CHAPS Nurse Care Manager helped me be as safe and active as I can be. 1 (3.6) 5 (17.9) 17 (60.7) 3 (10.7) 2 (7.1)
 I felt my CHAPS Nurse Care Manager helped me manage my PD. 2 (7.1) 6 (21.4) 17 (60.7) 2 (7.1) 1 (3.6)
 I felt my CHAPS Nurse Care Manager helped me manage my health overall. 3 (10.7) 4 (14.3) 18 (64.3) 2 (7.1) 1 (3.6)
  1. CHAPS Care Coordination for Health Promotion and Activities in Parkinson’s Disease
  2. PD Parkinson’s disease
  3. a The four pillar names are adapted from the Care Transition Program, Coleman E, J Am Geriatr Soc 2004; 52:1817
  4. b 2 responses were missing