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Table 1 Participant responses to telephone survey about CHAPS (n = 28)

From: Stakeholder perceptions of components of a Parkinson disease care management intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS)

Pillars and Specific Questions

Strongly Disagree

Disagree

n (%)

Not Sure

n (%)

Agree

n (%)

Strongly Agree

n (%)

Don’t recall

n (%)

Medication Self-management (Pillar 1a)

 I know how to take my PD medications.

–

1 (3.6)

–

24 (85.7)

3 (10.7)

–

 I know what my PD medications are for.

–

1 (3.6)

2 (7.1)

23 (82.1)

2 (7.1)

–

 I know the side effects of my PD medicationsb.

–

2 (7.7)

3 (11.5)

20 (76.9)

1 (3.8)

–

Use of Dynamic Patient-centered Record (Pillar 2)

 The Siebens Health Care Notebook that the CHAPS Nurse Care Manager mailed to me, helps my doctors, team, and me to take better care of myself.

–

9 (32.1)

7 (25.0)

8 (28.6)

2 (7.1)

2 (7.1)

 I felt my CHAPS Assessment Summary, located in the back of my personal health care notebook, was useful.

–

5 (17.9)

8 (28.6)

4 (14.3)

1 (3.6)

10 (35.7)

 I felt My Action Plan, located in my personal health notebook, was useful.

–

4 (14.3)

10 (35.7)

3 (10.7)

–

11 (39.3)

Parkinson disease Specialist Follow-up (Pillar 3)

 I know when to follow up with my PD doctor.

–

2 (7.1)

2 (7.1)

24 (85.7)

–

–

Parkinson disease Red Flags (Pillar 4)

 I know symptoms I should watch for to monitor my Parkinson disease (PD) condition.

–

1 (3.6)

2 (7.1)

23 (82.1)

2 (7.1)

–

 I know what I should do if my PD symptoms get worse.

–

2 (7.1)

1 (3.6)

24 (85.7)

1 (3.6)

–

Additional questions addressing the Helpfulness of Nurse Care Manager

 I felt I could talk to my CHAPS Nurse Care Manager about my condition.

–

2 (7.1)

3 (10.7)

19 (67.9)

3 (10.7)

1 (3.6)

 The CHAPS Nurse Care Manager helped me be as safe and active as I can be.

–

1 (3.6)

5 (17.9)

17 (60.7)

3 (10.7)

2 (7.1)

 I felt my CHAPS Nurse Care Manager helped me manage my PD.

–

2 (7.1)

6 (21.4)

17 (60.7)

2 (7.1)

1 (3.6)

 I felt my CHAPS Nurse Care Manager helped me manage my health overall.

–

3 (10.7)

4 (14.3)

18 (64.3)

2 (7.1)

1 (3.6)

  1. CHAPS Care Coordination for Health Promotion and Activities in Parkinson’s Disease
  2. PD Parkinson’s disease
  3. a The four pillar names are adapted from the Care Transition Program, Coleman E, J Am Geriatr Soc 2004; 52:1817
  4. b 2 responses were missing
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BMC Neurology

ISSN: 1471-2377

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