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Table 2 Participant perceptions of the Siebens Health Care Notebook

From: Stakeholder perceptions of components of a Parkinson disease care management intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS)

Themes Attributes Items (n)
Notebook assets
(n = 97)
Notebook benefitsa
(n = 42)
Helpful (10)
Informative (8)
Tool for organizing (7)
Very useful (6)
Personalized (5)
Communicating with providers (3)
Easy format to read (2)
Doctor looked through it (1)
  Notebook features liked
(n = 37)
Education sheets (10)
Medication list (6)
Organized by sections (6)
Doctor visit sheet (5)
CHAPS Assessment (3)
A lot of information (2)
Action tracking (2)
Serves as a review (1)
My Action Plan (1)
Business card holder (1)
  Affirmative feelings
(n = 18)
Impressed (5)
Likes (4)
Appreciative (3)
Nice (3)
Looking forward to using (2)
Notebook-type person (1)
Reasons for participants deferring Notebook review
(n = 28)
No time to review
(n = 17)
 
  Participant preference
(n = 6)
Wants to review later (3)
Currently not using the Notebook (3)
  Barriers to reviewing
(n = 5)
Vision too poor to read (1)
Lost glasses (1)
Lost Notebook (1)
Feels depressed (1)
Participant appears disorganized (1)
Reasons for not using Notebook
(n = 19)
Participant preference
(n = 12)
Not interested (6)
Can already remember everything (2)
Do not need anything (2)
Too busy (2)
  Notebook characteristics
(n = 7)
Cumbersome (4)
Requires writing (2)
Dislikes print material (1)
  1. aBenefits – defined as fulfillment of needs