Table 2 Data acquisition timepoints per study theme
Study theme | Timepoint of data collection | Patient OR Patients’ Family (time investment in minutes) | Treating physician (time investment in minutes) | Other participants (time investment in minutes) |
|---|---|---|---|---|
Treatment decisions (in a subset of minimum 6 cases) | 1 week after EIN admission | – | Questionnaire (20) | – |
3 months post-injury | – | Questionnaire (20) Qualitative interview (60) | – | |
6 months post-injury | – | Questionnaire (20) Qualitative interview (60) | – | |
1 year post injury | – | Questionnaire (20) Qualitative interview (60) | – | |
2 year post-injury | – | Questionnaire (20) Qualitative interview (60) | – | |
Ethical Dilemmas (in a subset of max 5 cases) | During the course of study cohort | – | Moral deliberation (120) | Multidisciplinary teama Moral deliberation (120) |
Dying in PDOC (in a subset of max 10 cases) | 2 months after death of the patient | Qualitative interview (90–120) | Questionnaire (20) Qualitative interview (60) | Nurses involved in terminal care Qualitative interview (90) |
Quality of outcomes (in a subset of max 10 cases) | 2 years post injury | Qualitative interview (90–120) | Questionnaire (10) Qualitative interview (30) | – |
Impact on health care professionals | Independent of study cohort | – | Focus group discussion (120) | Nurses Focus group discussion (120) |