|
PROs
|
Identified from literature (L) or added after interviews with healthcare professionals or patients (P)
|
Final PROs used in the SOS-SAH
|
|---|
|
Fatigue
|
L
|
Yes
|
|
Pain / headache
|
L
|
Yes (headache only)
|
|
Mobility
|
L
|
No
|
|
Self-care
|
L
|
No
|
|
Vision
|
L
|
Yes
|
|
Language
|
L
|
Yes
|
|
Upper extremity functioning
|
L
|
No
|
|
Sleep disorders
|
L
|
No
|
|
Problems with sexuality
|
L
|
Yes
|
|
Cognitive functioning
|
L
|
Yes
|
|
Personality change
|
L
|
Yes
|
|
Depression
|
L
|
Yes
|
|
Anxiety
|
L
|
Yes
|
|
Posttraumatic stress disorder
|
L
|
No
|
|
Work and productivity
|
L
|
No
|
|
Family roles
|
L
|
No
|
|
Social roles
|
L
|
Yes
|
|
Smell
|
P
|
Yes
|
|
Hearing
|
P
|
Yes
|
|
Taste
|
P
|
Yes
|
|
Hypersensitiviy to stimuli
|
P
|
Yes
|
|
Degree of recovery
|
P
|
No
|
- L: literature; P: healthcare professionals or patients; PROs: patient-reported outcomes; SOS-SAH: Questionnaire for Screening of Symptoms in aneurysmal Subarachnoid Hemorrhage