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Table 2 The selection process of relevant PROs for patients with an aSAH

From: Development of a patient-reported outcome measure for patients who have recovered from a subarachnoid hemorrhage: the “questionnaire for the screening of symptoms in aneurysmal subarachnoid hemorrhage” (SOS-SAH)

PROs

Identified from literature (L) or added after interviews with healthcare professionals or patients (P)

Final PROs used in the SOS-SAH

Fatigue

L

Yes

Pain / headache

L

Yes (headache only)

Mobility

L

No

Self-care

L

No

Vision

L

Yes

Language

L

Yes

Upper extremity functioning

L

No

Sleep disorders

L

No

Problems with sexuality

L

Yes

Cognitive functioning

L

Yes

Personality change

L

Yes

Depression

L

Yes

Anxiety

L

Yes

Posttraumatic stress disorder

L

No

Work and productivity

L

No

Family roles

L

No

Social roles

L

Yes

Smell

P

Yes

Hearing

P

Yes

Taste

P

Yes

Hypersensitiviy to stimuli

P

Yes

Degree of recovery

P

No

  1. L: literature; P: healthcare professionals or patients; PROs: patient-reported outcomes; SOS-SAH: Questionnaire for Screening of Symptoms in aneurysmal Subarachnoid Hemorrhage