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Table 4 Definite version of the questions of the SOS-SAH

From: Development of a patient-reported outcome measure for patients who have recovered from a subarachnoid hemorrhage: the “questionnaire for the screening of symptoms in aneurysmal subarachnoid hemorrhage” (SOS-SAH)

1 I have been able to bring to mind words that I wanted to use while talking to someone. Not at all A little bit Somewhat Quite a bit Very much
2 I have been able to focus my attention. Not at all A little bit Somewhat Quite a bit Very much
3 I have been able to remember to do things, like take medicine or buy something I needed. Not at all A little bit Somewhat Quite a bit Very much
4 I have been able to think clearly. Not at all A little bit Somewhat Quite a bit Very much
5 I have been able to remember the name of a familiar object. Not at all A little bit Somewhat Quite a bit Very much
6 I have been able to concentrate. Not at all A little bit Somewhat Quite a bit Very much
7 I have been able to pay attention and keep track of what I am doing without extra effort. Not at all A little bit Somewhat Quite a bit Very much
8 I have been able to learn new things easily, like telephone numbers or instructions. Not at all A little bit Somewhat Quite a bit Very much
9 In a busy environment I find myself quickly bothered by excessive stimuli. Not at all A little bit Somewhat Quite a bit Very much
10 I feel tense or ‘wound up’. Most of the time A lot of the time From time to time, occasionally Not at all  
11 I still enjoy the things I used to enjoy. Definitely as much Not quite so much Only a little Hardly at all  
12 I get a sort of frightened feeling as if something awful is about to happen. Very definitely and quite badly Yes, but not too badly A little, but it doesn’t worry me Not at all  
13 I can laugh and see the funny side of things. As much as I always could Not quite so much now Definitely not so much now Not at all  
14 Worrying thoughts go through my mind. A great deal of the time A lot of the time From time to time but not too often Only occasionally  
15 I feel cheerful. Not at all Not often Sometimes Most of the time  
16 I can sit at ease and feel relaxed. Definitely Usually Not often Not at all  
17 I feel as if I am slowed down. Nearly all the time Very often Sometimes Not at all  
18 I get a sort of frightened feeling like ‘butterflies’ in the stomach. Not at all Occasionally Quite often Very often  
19 I have lost interest in my appearance. Definitely I don’t take so much care as I should I may not take quite as much care I take just as much care as ever  
20 I feel restless as I have to be on the move. Very much indeed Quite a lot Not very much Not at all  
21 I look forward with enjoyment to things. As much as I ever did Rather less than I used to Definitely less than I used to Hardly at all  
22 I get sudden feelings of panic. Very often indeed Quite often Not very often Not at all  
23 I can enjoy a good book or radio or TV programme. Often Sometimes Not often Very seldom  
24 I feel fatigued. Not at all A little bit Somewhat Quite a bit Very much
25 I have trouble starting things because I am tired. Not at all A little bit Somewhat Quite a bit Very much
26 How run-down did you feel on average? Not at all A little bit Somewhat Quite a bit Very much
27 How fatigued were you on average? Not at all A little bit Somewhat Quite a bit Very much
28 I have trouble doing all of my regular leisure activities with others Never Rarely Sometimes Usually Always
29 I have trouble doing all of the family activities that I want to do Never Rarely Sometimes Usually Always
30 I have trouble doing all of my usual work (include work at home) Never Rarely Sometimes Usually Always
31 I have trouble doing all of the activities with friends that I want to do Never Rarely Sometimes Usually Always
32 I am a different person than I was before the (subarachnoid) hemorrhage. Not at all A little bit Somewhat Quite a bit Very much
33 How difficult do you find it to hold a conversation? Not at all A little bit Somewhat Quite a bit Very much
34 How difficult do you find it to follow a conversation? Not at all A little bit Somewhat Quite a bit Very much
35 How much difficulty do you have with your sight? Not at all A little bit Somewhat Quite a bit Very much
36 How much difficulty do you have with your sense of taste? Not at all A little bit Somewhat Quite a bit Very much
37 How much difficulty do you have with your sense of smell? Not at all A little bit Somewhat Quite a bit Very much
38 How much difficulty do you have with your hearing? Not at all A little bit Somewhat Quite a bit Very much
39 How bothered are you by headaches? Not at all A little bit Somewhat Quite a bit Very much
40 Has the (subarachnoid) hemorrhage affected your sex life? Not at all A little bit Somewhat Quite a bit Very much
Proxy questions for family members
 41 My family member is a different person than he/she was before the (subarachnoid) hemorrhage. Not at all A little bit Somewhat Quite a bit Very much
 42 My family member has been able to bring to mind words that he/she wanted to use while talking to someone. Not at all A little bit Somewhat Quite a bit Very much
 43 My family member has been able to focus his/her attention. Not at all A little bit Somewhat Quite a bit Very much
 44 My family member has been able to remember to do things, like take medicine or buy something he/she needed. Not at all A little bit Somewhat Quite a bit Very much
 45 My family member has been able to think clearly. Not at all A little bit Somewhat Quite a bit Very much
 46 My family member has been able to remember the name of a familiar object. Not at all A little bit Somewhat Quite a bit Very much
 47 My family member has been able to concentrate. Not at all A little bit Somewhat Quite a bit Very much
 48 My family member has been able to pay attention and keep track of what he/she is doing without extra effort. Not at all A little bit Somewhat Quite a bit Very much
 49 My family member has been able to learn new things easily, like telephone numbers or instructions. Not at all A little bit Somewhat Quite a bit Very much
  1. SOS-SAH: Questionnaire for Screening of Symptoms in aneurysmal Subarachnoid Hemorrhage