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Table 4 Main data categories identified in registers of motor neuron diseases

From: National registry for amyotrophic lateral sclerosis: a systematic review for structuring population registries of motor neuron diseases

  American Registry [33] CNDR [34] Italian Registry[35] MOVR [36] Swedish Registry [37] NZ MND [44]
ID01
ID02    
ID03      
ID04      
ID05      
ID06     
ID07     
ID08     
ID09     
ID010     
ID011      
ID012      
ID013      
ID014     
ID015     
  1. Subtitle: ID01 - Demographic data; ID02 - General health history; ID03 - Events related to diseases/injuries, Classification; ID04 - Pulmonary function test/respiratory status; ID05 - Vital signs and other bodily measures; ID06 - Physical and neurological exams; ID07 - Tests of laboratory and bio-specimens/biomarkers; ID08 - Imaging diagnostics; ID09 - Non-imaging diagnostics; ID10 - Medication; ID11 - Cognition; ID12 - Functional status; ID13 - Quality of life and mental health; ID14 - Risk factors; ID15 - Health Care and medical assistance.