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Table 4 Main data categories identified in registers of motor neuron diseases

From: National registry for amyotrophic lateral sclerosis: a systematic review for structuring population registries of motor neuron diseases

 

American Registry [33]

CNDR [34]

Italian Registry[35]

MOVR [36]

Swedish Registry [37]

NZ MND [44]

ID01

∙

∙

∙

∙

∙

∙

ID02

  

∙

 

∙

∙

ID03

    

∙

 

ID04

    

∙

 

ID05

    

∙

 

ID06

   

∙

∙

 

ID07

    

∙

∙

ID08

   

∙

∙

 

ID09

   

∙

∙

 

ID010

∙

   

∙

 

ID011

    

∙

 

ID012

    

∙

 

ID013

    

∙

 

ID014

∙

   

∙

 

ID015

∙

  

∙

  
  1. Subtitle: ID01 - Demographic data; ID02 - General health history; ID03 - Events related to diseases/injuries, Classification; ID04 - Pulmonary function test/respiratory status; ID05 - Vital signs and other bodily measures; ID06 - Physical and neurological exams; ID07 - Tests of laboratory and bio-specimens/biomarkers; ID08 - Imaging diagnostics; ID09 - Non-imaging diagnostics; ID10 - Medication; ID11 - Cognition; ID12 - Functional status; ID13 - Quality of life and mental health; ID14 - Risk factors; ID15 - Health Care and medical assistance.
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BMC Neurology

ISSN: 1471-2377

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