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Table 3 Most frequently reported ADLs in relation to MFM32 item

From: Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

ADL domain MFM32 item Most frequently reported daily activity Reported in interviews Reported in survey
Dressing Item 4 (Pulling up the foot)A, B Putting on shoes
Item 3 (Bringing knee to chest)A,B Dressing lower body
Item 6 (Raise pelvis)A,B Putting on pants
Item 5 (Bringing hand to opposite shoulder)A Dressing upper body
Item 26 (Standing on one foot)A Dressing lower body
Mobility/transferring Item 7 (Roll from lying on front to back)A,B Turning and moving in bed to change positions
Item 8 (Lying down to sitting up)A,B Getting out of bed
Item 11 (Sit to stand)A,B Stand after a fall/from sitting on floor
Item 1 (Turning head)A Adjusting position in bed
Item 2 (Lifting head)A Lifting head to move pillow/getting out of bed
Item 25 (Stand without support)A Stand from sitting
Item 29 (Walking on a line)A Walking around the house
Item 12 (Sitting down on a chair from standing) A Sitting down when tired/unsteady
Item 24 (Standing up from sitting on chair) A Stand up from sitting at dinner table/to change position/when carrying objects
Self-care Item 15 (Bring arms up to place both hands on top of the head)A,B Brushing hair
Item 5 (Bringing hand to opposite shoulder)B Itching/scratching
Self-feeding Item 23 (Place forearms and/or hands on table)A,B Eating independently
Item 21 (Turning a ball over in hand)A,B Picking up food when eating
Item 16 (Extending elbow to touch a pencil)A,B Picking food off a table without help
Item 20 (Tearing a sheet of paper)A Opening a wrapper/food packaging
Item 13 (Maintain a seated position)B Eating while seated
Reaching, picking up and holding objects Item 17 (Picking up coins)A,B Picking up and holding small items
Item 9 (Sitting on the floor)A,B Holding objects in a seated position
Item 10 (Leaning towards a ball)A,B Reaching an object
Item 27 (Touching the floor while standing)A,B Touching the floor to pick up something
Item 32 (Squatting)A,B Picking something up from the floor
Physical activity Item 28 (Walking on heels)A,B Walking
Item 30 (Running)A,B Exercising
Item 31 (Hopping)A,B Exercising/playing sport/hopping
Item 29 (Walking on a line)B Walking
Item 26 (Standing on one foot)B Taking a step/walking
Writing and technology use Item 22 (Pointing at drawings)A,B Using a phone or other device/touchscreen device
Item 18 (Going around the edge of a CD)A,B Using a touchscreen device
Item 19 (Pick up pencil and draw loops)A,B Writing/drawing with a pen
Item 20 (Tearing a sheet of paper)B Using your hands to tear a piece of paper
Social contact/engagement Item 14 (Raise the head from the chest)A,B Having a conversation/engaging with others
Item 1 (Turning head)A,B Looking around the room
Item 2 (Lifting head)B Looking around the room
Toileting Item 25 (Stand without support)B Using a toilet independently
Item 12 (Sitting down on a chair from standing)B Using a toilet independently
Item 24 (Standing up from sitting on chair)B Standing from sitting on toilet
Performing work/school activities Item 13 (Maintain a seated position)A Doing work/schoolwork while seated
  1. AThe item was most frequently associated with the ADL based on the qualitative interview data
  2. BThe item was most frequently associated with the ADL based on the survey data
  3. The specific aspect of the ADL was reported in relation to the patient-friendly MFM32 item in the qualitative interviews and/or quantitative online survey
  4. The specific aspect of the ADL was not included as a response option in the quantitative online survey and was also not reported in the free-text response option by any respondents
  5. ADL Activities of daily living; MFM32 32-item Motor Function Measure