Persons with parkinsonism | ||
---|---|---|
Dimension | Outcome | Instrument |
Health | Quality of life | Parkinson’s Disease Questionnaire-39 (PDQ-39) [26] |
 | Depressive symptoms | Beck Depression Inventory II [27] |
 | Anxiety | State Trait Anxiety Inventory for Adults [28] |
 | Autonomic symptoms | Scales for Outcomes in Parkinson’s Disease—Autonomic Dysfunction (SCOPA-AUT)[29] |
 | Cardinal motor features | Numeric rating scale for bradykinesia, tremor, rigidity, postural imbalance and Movement Disorders Society Unified Parkinson Disease Rating Scale (MDS-UPDRS) part II on motor functions in daily life [30] |
 | Freezing | New Freezing of Gait Questionnaire [31] |
 | Acceptance of Illness | Acceptance of Illness Scale [32] |
 | Coping strategy | Ways of Coping Questionnaire [33] |
 | Activities of Daily Living | Self-assessment Parkinson’s Disease Disability score [34] |
 | Cognitive performance | Telephone Montreal Cognitive Assessment (MoCA) [35] |
Patient experience | Integrated Care | Patient Assessment of Chronic Illness Care + (PACIC +) [36] |
 | Continuity of care | Nijmegen Continuity of care questionnaire [37] |
 | Self-management | Patient Activation Measurement (PAM) [38] |
Carers | ||
Carer experience | Carer burden | Zarit Carer Burden Inventory [39] |
 | Self-management | Patient-activation measure – Caregivers (PAM-CG) [40] |
 | Quality of life of Carer | Parkinson’s Disease Questionnaire-Carers [41] |
 | Coping strategy of Carer | Brief COPE (Coping Orientation to Problems Experienced) [42] |
 | Social support of Carer | Multidimensional Scale of Perceived social support [43] |
Healthcare Professionals | ||
Healthcare professional experience | Healthcare Professional wellbeing | Professional Fulfilment Index [44] |
 | Integrated Care | Assessment of chronic illness care (ACIC) [45] |
 | Shared decision making | The 9-item Shared Decision Making Questionnaire (SDM-Q-9) [46] |