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Table 5 Frequency of mental health resource use per patient with NDM per year in the UK

From: Improving the understanding of how patients with non-dystrophic myotonia are selected for myotonia treatment with mexiletine (NaMuscla): outcomes of treatment impact using a European Delphi panel

Mental health resource

BSC – Mean number of annual visits (range)

Mexiletine – Mean number of annual visits (range)

Difference (%)

BSC:mexiletine ratioa

Neuropsychologist

0 (0-0)

0 (0-0)

0

1

General practitioner (mental health-related visits)

7.25 (0-20)

5.25 (0-12)

-2

1.4

Psychiatrist

0.5 (0-2)

0.5 (0-2)

0

1

Psychologist

4 (0-10)

3 (0-6)

-1

1.3

  1. Four experts completed this question in RD2, one expert dropped-out
  2. Key: BSC Best supportive care (defined as any supportive care that symptomatic adult patients with NDM may receive that does not involve symptom-modifying pharmacological treatment; includes, for example, the use of supportive medication [e.g. pain killers], mobility aids, physiotherapy or speech therapy), HRU Healthcare resource utilization
  3. aThe ratio was calculated by dividing the mean proportion number of annual visits of patients receiving BSC that require a resource by the mean proportion number of annual visits of patients treated with mexiletine (NaMuscla) that require the resource