ED-5Q domain | INQoL domaina | CR1 | % agreement among panel (% of responders)b | CR2 | % agreement among panel (% of responders)c |
---|---|---|---|---|---|
Usual activities | The things you do – leisure and work activities | Yes | 89% (100%) | NA | NA |
Pain/discomfort | Your pain | Yes | 89% (100%) | NA | NA |
Anxiety/depression | How you feel/emotions | Yes | 78% (87.5%) | NA | NA |
Mobility | The locking of your muscles | No | 44% (50%) | No | 37.5% (43%) |
Your muscle weakness | No | 55% (62.5%) | No | 50% (71%) | |
How tired you feel/fatigue | No | 22% (25%) | NA | NA | |
Your independence | No | 11% (12.5%) | NA | NA | |
The way you look/body image | No | 11% (12.5%) | NA | NA | |
Self-care (washing and dressing) | The things you do – daily activities | No | 44% (50%) | NA | NA |
At the moment, does your muscle condition affect your ability to do the following activities: daily activities (for example, washing, dressing and housework) | NA | NA | Yes | 75% (86%) | |
Your independence | No | 44% (50%) | NA | NA | |
How important to you is the effect of your muscle condition on your level of independence | NA | NA | No | 12.5% (14%) | |
The way you look/body image | No | 11% (12.5%) | NA | NA |