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Table 3 Threat appraisal

From: Covid-19 threat and coping: application of protection motivation theory to the pandemic experiences of people affected by amyotrophic lateral sclerosis

Themes

Illustrative quotations

Threats to

 Emotional wellbeing

• “My husband expressed the frustration of feeling isolated and not being able to fully live and enjoy the limited time he may have left” (P52, Caregiver)

 Medical care

• “We scheduled an appointment for an assessment as my wife’s breathing is beginning to decline. Unfortunately, the appointment has been cancelled and we are not sure when it will be rescheduled.” (P20, Caregiver)

 Home support

• “It is concerning how vulnerable he is with the various [home support workers] coming and going to care for him.” (P59, Caregiver)

 Access to advance care planning

• “It’s entirely possible she won’t be moved to a palliative care facility due to Covid.” (P81, Caregiver)

 Access to end-of-life options

“I do want to speak to a Health professional about [end-of-life options], but that is hard to arrange when we are in isolation.” (P108, PwALS)