Table 2 Demographics of persons with MS (N = 50)
Characteristics | Patients |
|---|---|
Women, n (%) | 36 (72) |
Age in years, mean (SD) | 48 (13) |
Education, n (%) | |
Primary degree (9 grades) | 3 (6) |
Secondary degree (10 grades) | 12 (24) |
High school degree (12/13 grades) | 35 (70) |
MS diagnosis, n (%) | |
Suspicion of MS | 4 (8) |
MS diagnosis | 46 (92) |
Years with MS since diagnosis, mean (SD) | 12 (10) |
MS type, n (%) | |
Clinically isolated syndrome | 1 (2) |
Relapsing-remitting MS | 34 (68) |
Secondary-progressive MS | 9 (18) |
Primary-progressive MS | 4 (8) |
Unclear | 2 (4) |
Patient determined disease steps (PDDS), mean (SD) | 2 (2) |
Stage of Decision Making in DMT, n (%) | |
Persons haven’t begun to think about the choices | 4 (8) |
Persons haven’t begun to think about the choices, but are interested in doing so | 1 (2) |
Persons are considering the options now | 4 (8) |
Persons are close to selecting an option | 4 (8) |
Persons have already made a decision, but are still willing to reconsider | 17 (34) |
Persons have already made a decision and are unlikely to change their mind | 20 (40) |
eHIQ part 1 sum index score, mean (SD) | 58.2 (18.2) |
1.1 attitudes towards online health information | 52.0 (20.4) |
1.2 attitudes towards sharing health experiences online | 64.3 (19.1) |
Participants from qual. Interview study in development phase, n (%) | 14 (28) |