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Table 3 User’s navigation and usefulness of the website (N = 50)

From: Development and evaluation of a website with patients experiences of multiple sclerosis: a mixed methods study

Characteristics

Patients

Number of logins, n (%)

 More than 1 time a week, n (%)

7 (14)

 Once a week at most

26 (52)

 Once a month at most

16 (32)

Spent time (in hours), mean (SD)

3.2 (4.3)

Influence of age on choosing a video/audio a, mean (SD)

3.3 (1.6)

Influence of sex on choosing a video/audio a, mean (SD)

4.4 (1.4)

Themes browsed, n (%)

 MS diagnosis

40 (80)

 Disease-modifying therapies

40 (80)

 Lifestyle measures

36 (72)

 Rehabilitation

35 (70)

 Talking about MS with others

40 (80)

 Family and desire for children

19 (38)

 Social life

32 (64)

 Training and work

27 (54)

 Holiday planning and travelling

17 (34)

 Constrains and adaptions

32 (64)

 Coping with MS

38 (76)

eHIQ part 2 sum index score, mean (SD)

70.7 (12.9)

 2.1 confidence and identification

67.4 (15.1)

 2.2 information and presentation

81.8 (12.9)

 2.3 understanding and motivation

62.9 (16.7)

Grade for the website b, mean (SD)

2.1 (0.8)

Helpful in DMT decision-making c, mean (SD)

2.3 (0.8)

SURE d, mean (SD)

4.4 (1.6)

DSES c, mean (SD)

83.9 (16.0)

PrepDM f, mean (SD)

53.3 (27.1)

PAM g, mean (SD)

42.3 (4.5)

  1. a Scale range from 1 (very strong influence) – 6 (no influence at all). b Scale range from 1 (best possible grade) – 6 (lowest possible grade). c Scale range from 1 (very helpful) – 5 (not helpful at all). d A score of < 4 indicates a perception of a decisional conflict. e Higher scores indicate higher perceived level of self-efficacy. f Higher scores indicate higher perceived level of preparation for decision-making. g The sum score range from 13 to 52. Higher scores indicate higher perceived level of knowledge, skill, and confidence in managing chronic conditions