MSmonitor-plus program and video calling care (MPVC) for multidisciplinary care and self-management in multiple sclerosis: study protocol of a single-center randomized, parallel-group, open label, non-inferiority trial

Hoving, M.; Jongen, P. J.; Evers, S. M. A. A.; Edens, M. A.; Zeinstra, E. M. P. E.

doi:10.1186/s12883-022-02948-z

Table 1 Constructs and validated questionnaires

From: MSmonitor-plus program and video calling care (MPVC) for multidisciplinary care and self-management in multiple sclerosis: study protocol of a single-center randomized, parallel-group, open label, non-inferiority trial

Construct	Operationalization
Construct	PROM by MS monitor Plus for patients	PROM abbreviation	Ref.
MS-Bladder disorders	Screening bladder disorders (past 7 days)	Actionable	[27]
Quality of life of patients with urinary disorders in neurologic conditions	Short Form- Qualiveen	SF-Qualiveen	[28]
For individual tension strength	Checklist	Checklist	[29]
Functioning problems of MS and the perception of these problems. Proactive coping	Multiple Sclerosis Impact Profile	MSIP	[30]
Impact of MS. Proactive coping	Multiple Sclerosis Impact Scale (past 2 weeks)	MSIS-29	[31]
Bowel problems resulting from neurogenic disorders	Neurogenic Bowel Dysfunction Score	NBD	[32]
Decrease in relapse frequency. Proactive coping	The combination MFIS-5^a, LMSQoL^a, and Medication and Adherence Inventory. The combined use of MFIS-5, LMSQoL, and Medication and Adherence Inventory (“Quickscan”) enables quick, monthly assessments of health-related quality of life (HRQoL), fatigue experienced, medication, and DMD adherence	Quickscan	[19]
Anxiety and depression	Hospital anxiety and depression scale	HADS	[33]
Questionnaire on intimacy and sexuality in multiple sclerosis (MS) or spinal cord injury	The Multiple Sclerosis Intimacy and Sexuality Questionnaire	MSISQ-15	[34]
MS-specific quality of life	Multiple Sclerosis Quality of Life	MSQoL-54	[35]
Check PML and check schub	Natalizumab (Tysabri) checklist		[36]
Check schub	Questionnaire “Do I have a schub?”		[29, 37]
The patient can keep track of activities and moments of rest in order to gain insight into fatigue	Diary		[37]
Construct	PROMs by RMp (eCRF), for patients	PROM abbreviation	Ref.
Questionnaire for measuring subjective cognitive functioning. The items are globally related to memory and attention	The Cognitive Failure Questionnaire	CFQ	[38]
Patient’s perception of overall health	Euroqol Vertical Visual Analogue Scale	EQ VAS, versie 2.0	[39]
Health status: Mobility, Self-care, usual activities, pain/discomfort, anxiety and depression Economic appraisal of health	Euroqol-5 Dimensions with 5 Levels	Eq-5d-5L Versie 2.0	[40]
Severity of MS Health status Proactive coping	iMTA Medical Consumption Questionnaire	iMCQ	[41]
Effect of work on illness	iMTA Productivity Cost Questionnaire	iPCQ	[41]
MS-Participation and autonomy	Impact on participation and autonomy	IPA	[42]
Self-efficacy The MSSES-Function subscale measures confidence with functional abilities, whereas the MSSES-Control subscale measures confidence with managing symptoms and coping with the demands of illness	MS Self-Efficacy Scale	MSSES	[43]
Self-management of health Information on the disease, dealing with the consequences of chronic disease, active role in consultation, and the extent to which complaints and symptoms can be monitored at home	Partners in Health Scale (Working together on health)	PIH-NL	[44, 45]
Construct	Prems by RMP (eCRF) for patients	PREM abbreviation	Ref.
Satisfaction	Patient satisfaction questionnaire Isala	PTO	[46]
Construct	Proms by consultation	PROM abbreviation	Ref.
Severity of MS, Side effect DMT	E-consulting with neurologist/nurse specialist MS

PROM Patient-reported outcome measure, PREM Patient-Reported Experience Measure, Ref. reference
^aIf applicable

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