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Table 2 Collected quantitative and qualitative caregiver data

From: PerBrain: a multimodal approach to personalized tracking of evolving state-of-consciousness in brain-injured patients: protocol of an international, multicentric, observational study

Data

C0

C1

C2

C3

Sociodemographic characteristics

x

   

Religious/spiritual information

x

  

x

FCV-19S

x

x

x

x

BIPQ (adapted to caregivers)

x

x

x

x

EQ-5D-5L

x

x

x

x

ACQoL

x

 

x

x

HADS

x

x

x

x

RS14

x

  

x

SOC-13

x

  

x

Treatment choices survey

x

 

x

 

Qualitative interview

 

x

  
  1. Timepoints: C0 (before diagnostics), C1 (after T1, 1-2 months after onset of DoC), C2 (after T2, 4-7 months after onset of DoC), C3 (after T3, 9-12 months after onset of DoC)