Sydney epilepsy incidence study to measure illness consequences: the SESIMIC observational epilepsy study protocol

Hackett, Maree L; Glozier, Nicholas S; Martiniuk, Alexandra L; Jan, Stephen; Anderson, Craig S

doi:10.1186/1471-2377-11-3

Table 1 Schedule of assessments in the SESIMIC study

From: Sydney epilepsy incidence study to measure illness consequences: the SESIMIC observational epilepsy study protocol

Participant Assessment^a	Baseline^b	4 month	12 month
Initials	X
Date of birth	X
Sex	X
Inclusion criteria	X
Contact information	X
*Interview Characteristics*
Method of assessment	X	X	X
Participant or proxy	X	X	X
Alive at scheduled time of assessment	X	X	X
Telephone Interview for Cognitive Status (TICS) [63]	X	X	X
*Seizure characteristics*[45]
Consciousness	X
Onset	X
Frequency	X	X	X
Phenomena	X	X	X
Precipitants	X
Family history	X
Epilepsy-related medical history	X
New medical problems		X	X
Modified Cumulative Illness Rating Scale [66]	X	X	X
Birth History	X
Medication	X	X	X
Investigations (EEG, CT, MRI etc)	X	X	X
Accidents/falls/injuries		X	X
Access to services		X	X
Final diagnosis		X
Developmental milestones		X^c	X^c
Cognitive assessment (optional)		X	X
*Demographic characteristics*
Born in Australia	X
Years lived in Australia	X
Language other than English spoken at home	X
Marital status	X	X	X
Number of financially dependent children	X
Social/financial living status	X	X	X
*Medical History*
Psychotropic medications	X	X	X
Brief Illness Perceptions Questionnaire [48]	X	X	X
WHO Disability Assessment Schedule [67]	X^a	X^a	X^a
Strengths and Difficulties Questionnaire [50]	X^c	X^c	X^c
Alcohol consumption: Audit Alcohol Use Disorders Identification Test (AUDIT-C) [51]	X^a	X^a	X^a
*Education and Employment*
Highest qualification	X	X	X
Current student	X	X	X
Absences from education	X	X	X
Lifetime occupation	X	X	X
Current occupation	X	X	X
Job content questionnaire [53]	X^a	X^a	X^a
*Financial Situation*
Household benefits	X	X	X
Main source of income	X	X	X
Insurance	X	X	X
Economic hardship	X	X	X
Income	X	X	X
*Transport*
Vehicles driven and frequency	X^a	X^a	X^a
Transport to work/education	X^a	X^a	X^a
Drive for work	X^a	X^a	X^a
*Childcare*
Location	X^c	X^c
Duration	X^c	X^c
Absence from childcare	X^c	X^c
*Support*
Confiding relationship	X	X	X
Family adaptation, partnership, growth affection, resolve questionnaire [55]	X	X	X
Inventory of Family Protective Factors [56]	X	X	X
Social media use	X	X	X
*Mood*
Hospital Anxiety and Depression Scale [57]	X^a	X^a	X^a
General Health Questionnaire	X^c	X^c	X^c
*Stigma*
Modified HIV Stigma Scale [59]	X	X	X
Disclosure of epilepsy diagnosis	X	X	X
*Sleep*
Pittsburgh Sleep Quality Index [60]	X	X	X
*Health related quality of life*
EuroQol [47]	X^a	X^a	X^a
Quality of Life in Epilepsy for Adolescents [61]	X^b	X^b	X^b
Longitudinal Study of Australian Children [62]	X^d	X^d	X^d

^a Adult only (> 18 years of age)
^b Adolescent only (11-18 years of age)
^c Child only (< 18 years of age)
^d Young child (5-10 years of age)

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ISSN: 1471-2377

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