From: How integrated are neurology and palliative care services? Results of a multicentre mapping exercise
Characteristics | Condition | Neurology service | Palliative care service |
---|---|---|---|
Catchment area (square miles) | MS | Range: 39– 5,840 | Range: 39 – 1,008 |
MND | Range: 39 – 5,840 | ||
Parkinsonism | Range: 39 – 6,525 | ||
Population of catchment area (number) | MS | Range: 142,000 – 3,500,000 | Range: 235,000 – 1,398,000 |
MND | Range: 142,000 – 3,500,000 | ||
Parkinsonism | Range: 300,000 – 3,500,000 | ||
Number of patients seen annually | MS | Range: 457 – 5,018 (3510 outpatient + 1508 inpatient) | Range: 0 - 5 |
MND | Range: 10 - 400 | Range: 9/12 - 88 | |
Parkinsonism | Range: 148 (appointments per year) – 1,558 (161 inpatients, 1397 outpatients) | Range: 3 - 25 | |
Total – not disease specific | Range: 550 – 2,298 | ||
Service provided | MS | Frequent clinics. Some sites nurse-led telephone helplines and home visits. | Various setting; hospital, community and hospice. Most across settings |
MND | Clinics (focus on holistic, multi-professional service). | ||
Parkinsonism | Clinics (inclination to work multi-professionally). Some links to community | ||
Integration of the two services | MS | Limited – most sites no joint visits, or formal links. Some informal relations, few sites joint clinics. | |
MND | Joined - most sites joint visits or other (formal) relationships | ||
Parkinsonism | Limited to Mixed – most sites no joint visits or other formal relationships. Disease dependent – best for MSA/PSP |