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Table 2 Cohort study data collection instruments and timeline

From: The everyday experience of living with and managing a neurological condition (the LINC study): study design

 

Nov 2011

Dec 2011

Jan 2012

Feb 2012

Mar 2012

Apr 2012

May 2012

June 2012

July 2012

Aug 2012

Sept 2012

Oct 2012

Nov 2012

Dec 2012

Recruitment

         

Adult-NC Participants (Including Young Adult NC Participants)

Monthly interviews

   

1

2

3

4

5

6

7

8

9

10

11

The LINC Study Population Survey

          

1

   

PACIC

     

1

     

2

  

MSPSS

    

1

   

2

   

3

 

Life-H

    

1

   

2

   

3

 

GYV (Young Adults with NC Only)

    

1

   

2

    

3

Parent Participants

Monthly Interviews

   

1

2

3

4

5

6

7

8

9

10

11

The LINC Study Population Survey

          

1

   

PACIC

     

1

     

2

  

MSPSS

    

1

   

2

   

3

 

Life-H

    

1

   

2

   

3

 

Mature Minor Participants

Health Status

    

1

   

2

    

3

TRAQ

    

1

   

2

    

3

GYV

    

1

   

2

    

3

PAM

    

1

   

2

    

3

PACIC

    

1

   

2

    

3