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Table 2 Contents of data collection in the 4C studies

From: A profile of The Clinical Course of Cognition and Comorbidity in Mild Cognitive Impairment and Dementia Study (The 4C study): two complementary longitudinal, clinical cohorts in the Netherlands

  Baseline 12 months 24 months 36 months Assessed by Source
Informed consent     Research assistant Participant and informant
Demographics Research assistant Participant and informant
MMSE [35] Physician Participant
CDR [34] Physician Participant and informant
Subjective cognitive functioning [17] Physician Informant
Neuropsychological assessment Psychologist Participant
Physical examination & structural medical review Physician Participant and informant
Medications (prescribed & taken) Physician Participant and informant
Hospitalization (if any)   Research assistant Participant and informant
Syndromal diagnoses Physician Participant and informant
Comorbidities (CIRS-G) [18] Physician Participant and informant
Frailty (Fried criteria + Frailty Index) [19, 20] Research assistant Participant and informant
DAD (disability assessment) [21] Research assistant Informant
GDS-15 (depression, self-reported) [22] Research assistant Participant
NPI (neuropsychiatric symptoms) [23] Research assistant Informant
Euroqol 5D [24] Research assistant Informant
Care resource use Research assistant Informant
Refusal or withdrawal data Research assistant Participant and informant
Institutionalization (outcome & date)   Research assistant Participant and informant
Death (outcome & date)   Research assistant Informant