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Table 2 Details of the most frequent activities that caregivers hope will be achieved

From: Content validity and clinical meaningfulness of the HFMSE in spinal muscular atrophy

Activities to achieve % Activities to achieve %
Strength in the upper limbs 15,7% Stand up from a chair 2,5%
Rolling 9,0% Stand up from floor 2,5%
Walking 7,1% Respiratory function 2,2%
Standing independently 6,2% Writing skills 2,2%
Strength of the head 5,6% Run 1,9%
Personal hygiene 4,9% General autonomy 1,5%
Move independently 4,9% Crawling 1,5%
Do stairs 4,6% Hop/Jump 1,5%
Eat independently 3,1% Strength of the hands 1,5%
Sit independently 3,1% Use manual wheel-chair 1,2%
Strength in the lower limbs 2,8% Balance 1,2%
Strength of the trunk 2,8% Standing with support 1,2%
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