Table 4 Relative validity of the NMDIP, domain specific and generic measurement instruments compared, using subgroups of Quality of Life (n = 702)
From: Stability and relative validity of the Neuromuscular Disease Impact Profile (NMDIP)
Group A (n = 53) Very poor or poor QoL | Group B (n = 175) Neither poor nor good QoL | Group C (n = 474) Good or very good QoL | Kruskal-Wallis H Chi Square | RVb | Group A-Ba | Group B-Ca | Group A-Ca | ||||
|---|---|---|---|---|---|---|---|---|---|---|---|
n | Median (IQR) | n | Median (IQR) | n | Median (IQR) | es | es | es | |||
NMDIP | |||||||||||
Muscle Functions | 52 | 5 (2) | 167 | 4 (2) | 439 | 3 (2) | 81.4 | 50 | 0.34 | 0.23 | 0.35 |
Movement Functions | 46 | 4 (3) | 148 | 3 (2) | 400 | 2 (3) | 83.8 | 51 | 0.30 | 0.27 | 0.35 |
Excretion and Reproductive Functions | 36 | 3 (5) | 129 | 2 (2) | 344 | 1 (2) | 40.6 | 25 | 0.21 | 0.22 | 0.25 |
Swallowing and Speech Function | 49 | 2 (3) | 162 | 0 (1) | 458 | 0 (1) | 43.6 | 27 | 0.26 | 0.14 | 0.27 |
Mental Functions and Pain | 45 | 8 (4) | 147 | 6 (4) | 405 | 3 (4) | 147.7 | 90 | 0.28 | 0.42 | 0.40 |
Activities of Moving around | 53 | 10 (8) | 175 | 4 (6) | 474 | 3 (5) | 75.2 | 46 | 0.36 | 0.19 | 0.35 |
Self-care and Domestic Activities | 53 | 10 (13) | 175 | 3 (8) | 473 | 2 (4) | 79.9 | 49 | 0.32 | 0.22 | 0.33 |
Participation in Life Situations | 52 | 4.5 (5) | 175 | 2 (4) | 468 | 0 (2) | 103.7 | 63 | 0.32 | 0.26 | 0.39 |
SF-36 | |||||||||||
Physical Functioning | 53 | 12 (4) | 175 | 17 (8) | 473 | 21 (10) | 85.7 | 52 | 0.38 | 0.23 | 0.34 |
Mental Health | 53 | 20 (6) | 175 | 22 (6) | 473 | 25 (4) | 132.5 | 81 | 0.27 | 0.35 | 0.38 |
Social Functioning | 53 | 5 (3) | 175 | 7 (2) | 473 | 9 (2) | 138.3 | 84 | 0.31 | 0.36 | 0.38 |
WHOQOL-bref | |||||||||||
Physical Health and Autonomy | 53 | 3 (5) | 173 | 3 (0) | 466 | 3 (0) | 117.7 | 72 | 0.21 | 0.41 | 0.34 |
Psychological Health | 53 | 3 (0) | 173 | 3 (1) | 466 | 4 (0) | 163.8 | 100 | 0.31 | 0.40 | 0.41 |
Social Relations | 50 | 3 (1) | 170 | 4 (1) | 450 | 4 (0) | 61.3 | 37 | - | 0.25 | 0.25 |
GARS | |||||||||||
Activities of Daily Living | 53 | 26 (16) | 175 | 17 (10) | 474 | 13 (7) | 80.6 | 49 | 0.37 | 0.20 | 0.35 |
Instrumental Activities of Daily Living | 52 | 22 (12) | 175 | 15 (9) | 472 | 11 (9) | 82.8 | 51 | 0.34 | 0.23 | 0.33 |
IPAQ | |||||||||||
Autonomy Indoors | 53 | 19 (9) | 175 | 14 (5) | 473 | 12 (7) | 109.6 | 67 | 0.32 | 0.29 | 0.36 |
Family Role | 53 | 24 (8) | 175 | 20 (8) | 471 | 15 (8) | 127.6 | 78 | 0.28 | 0.34 | 0.37 |
Autonomy Outdoors | 53 | 15 (4) | 174 | 11 (5) | 471 | 8 (5) | 157.6 | 96 | 0.42 | 0.35 | 0.43 |
Social Relations | 53 | 15 (6) | 175 | 13 (3) | 472 | 11 (5) | 134.1 | 82 | 0.26 | 0.35 | 0.37 |