Table 4 Measurements classification and use in data sources (n = 108)

Global

H&Y

Hoehn and Yahr

(n = 30) °1,2,3,4,5,7,9,10,13,14,16,17,18,20,21,25,26,27,31,33,34,35,38,40,41,42,44,45,50,51

UPDRS-III

Unified Parkinson’s Disease Rating Scale - motor examination

(n = 41) °1,2,3,4,5,7,8,10,11,13,14,16,17,18,19,20,21,24,25,26,27,28,30,32,33,34,35,36,38,40,41,42,43,44,45,46,47,49,50,52,53

UPDRS-IV

Unified Parkinson’s Disease Rating Scale - motor complications

(n = 2) n°1,14

Gait and balance

Berg balance test

(n = 2) n°7,10

Flamingo test

(n = 1) n°38

FGA

Functional Gait Assessment

(n = 2) n°7,10

FOGQ

Freezing of gait questionnaire

(n = 2) n°7,10

Gait speed

(n = 4) n°7,8,10,46

PIGD

Postural Instability / Gait Difficulty scale

(n = 2) n°5,40

Tandem gait

(n = 1) n°48

TUG

Time Up and Go test

(n = 6) n°7,10,35,38,40,47

Walk test

(n = 5) n°7,10,46,47,48

Fine movement

Finger tapping

(n = 3) n°4,46,47

Purdue pegboard test

(n = 6) n°4,7,10,38,46,47

Reaction time

(n = 1) n°24

Unknown

(n = 1) n°15

Global

ACE

Addenbrooke’s Cognitive Examination

(n = 1) n°40

AD-8

Ascertian Dementia 8-item Informant

(n = 1) n°31

BDRS

Blessed Dementia Rating Scale

(n = 2) n°19,53

CAMCOG

Cambridge Cognitive Assessment

(n = 1) n°49

CASI

Cognitive Abilities Screening Instrument

(n = 1) n°24

CDR

Clinical Dementia Rating scale

(n = 5) n°3,4,6,19,30,53

Clock drawing test

(n = 1) n°4

DRS2

Dementia Rating Scale 2

(n = 6) n°4,19,25,26,34,53

HDS

Hasegawa Dementia Rating Scale

(n = 1) n°24

MDRS

Mattis Dementia Rating Scale

(n = 2) n°4,26

MMSE

Mini Mental State Examination

(n = 30) °1,3,4,5,7,9,10,11,12,14,15,16,18,20,21,24,26,28,31,34,36,37,38,42,44,45,46,47,48,50

MoCA

Montreal Cognitive Assessment

(n = 9) n°1,4,5,20,34,38,40,41,43

IQCODE

Informant Questionnaire on Cognitive Decline in Elderly

(n = 1) n°24

SPMSQ

Short Portable Mental Status Questionnaire

(n = 1) n°40

TICS-M

Telephone Interview Cognitive Status Modified

(n = 2) n°31,37

Attention/ Working memory

Digit span

(n = 6) n°3,4,11,30,37,46

STROOP test

(n = 2) n°4,11

Executive function

Comprehension

(n = 2) n°28,49

RBANS

Repeatable Battery for Assessment of Neuropsychological Status

(n = 1) n°8

Symbol digit

(n = 3) n°16,43,46

Trail Making Test

(n = 4) n°3,4,19,30

Verbal fluency

(n = 12) n°3,9,11,19,25,30,35,37,38,43,46,49

Language

BNT

Boston Naming Test

(n = 5) n°3,25,30,37,46

COWA

Controlled Oral Word Association

(n = 4) n°1,3,4,11

FAS

Letter-Number Sequencing and Phonemic verbal fluency

(n = 2) n°11,25

Naming

(n = 1) n°49

NART

American National Adult Reading test

(n = 2) n°3,46

WAIS

Wechlser Adult Intelligence Scale

(n = 6) n°3,4,9,11,19,30

Memory

BIMC

Blessed Information Memory Concentration

(n = 2) n°6,19

FCSRT

Free and Cue Selective Reminding Test

(n = 2) n°3,19

FOME

Fuld Object Memory Evaluation

(n = 1) n°19

HVLT

Hopkins Verbal Learning test

(n = 3) n°11,25,43

Memory

(n = 5) n°3,16,35,46,53

RAVLT

Rey auditory verbal learning test

(n = 3) n°1,4,30

Recall

(n = 2) n°46,49

WMS

Wechsler Memory Scale

(n = 2) n°9,30

Visual-spatial

BVRT

Benton Visual Retention Test

(n = 1) n°9

CPM

Raven’s coloured progressive matrices

(n = 2) n°19,46

JLO

Benton Judgement Line Orientation

(n = 4) n°4,25,43,46

Orientation

(n = 1) n°53

PARR

Picture Arrangement subtest

(n = 1) n°9

ROCF

Rey-Osterrieth Complex Figure test recall

(n = 1) n°11

Visual attention

(n = 1) n°19

Unknown

(n = 1) n°15

Depression / Anxiety

AS

Apathy Evaluation Scale

(n = 3) n°4,32,33

BAI

Beck Anxiety Inventory

(n = 4) n°18,30,33,44

BDI

Beck Depression Inventory

(n = 9) n°5,11,18,26,30,32,33,36,44

CESD-10

Center for Epidemiological Studies Depression Scale

(n = 3) n°24,39,47

GDS

Geriatric Depression Screening scale

(n = 17) n°1,3,4,5,7,8,10,14,20,25,26,28,34,40,43,48,50

HAM-A

Hamilton Anxiety Rating Scale

(n = 2) n°33,40

HDRS

Hamilton Depression Rating Scale

(n = 3) n°4,15,33

Leeds

Leeds anxiety and depression scale

(n = 1) n°38

SCID

Structured Clinical Interview - Depression

(n = 2) n°28,40

STAI

State Trait Anxiety Inventory

(n = 4) n°18,24,39,43

UPDRS-I

Unified Parkinson’s Disease Rating Scale - mentation behavior and mood

(n = 7) n°1,14,17,25,27,43,52

ZUNG

Zung depression scale

(n = 1) n°19

TOC

OCI-R

Obsessive-Compulsive Inventory – Revised

(n = 1) n°18

QUIP

Questionnaire for impulsive-compulsive disorders in parkinson’s disease-rating scale

(n = 2) n°40,43

YBOCS

Yale-Brown obsessive-compulsive scale

(n = 1) n°33

Other

CoNeg

composite negative score

(n = 1) n°29

MMPI

Multiphasic Personality Inventory

(n = 1) n°29

NPI

NeuroPsychiatric Inventory questionnaire

(n = 3) n°1,34,47

QABB

Questionnaire About Buying Behaviour

(n = 1) n°40

Rush

Rush Hallucination Inventory

(n = 1) n°21

SCS

Sexual Compulsivity Scale

(n = 1) n°40

YMRS

Young Mania Rating Scale

(n = 1) n°33

Unknown

(n = 4) n°6,15,46,49

ACS

Activity Card Sort

(n = 1) n°20

ADCS-ADL

Alzheimer’s Disease Cooperative Study ADL Inventory

(n = 1) n°25

IADL

Katz Instrumental Activity of Daily Living

(n = 2) n°46,47

S&E

Schwab & England activities of daily living scale

(n = 10) n°5,14,18,26,34,38,41,43,44,53

UPDRS-II

Unified Parkinson’s Disease Rating Scale - self-evaluation of the activities of daily living

(n = 9) n°1,5,11,14,26,27,40,43,52

Unknown

(n = 3) n°15,17,51

Actigraphy

(n = 1) n°47

ESS

Epworth Sleepiness Scale

(n = 4) n°5,14,38,43

FSS

Fatigue Severity Scale

(n = 1) n°40

ISI

Insomnia Severity Index

(n = 1) n°40

MSQ

Mayo clinic Sleep Questionnaire

(n = 2) n°4,30

PDSS

Parkinson’s disease sleep scale

(n = 1) n°40

PSQI

Pittsburg Sleep Quality Index

(n = 2) n°21,40

RBDSQ

REM Sleep Behaviour Disorder Screening Questionnaire

(n = 2) n°38,43

SA-SDQ

Sleep Apnea Scale of Sleep Disorders Questionnaire

(n = 1) n°40

SSS

Stanford Sleepiness Scale

(n = 1) n°40

Unknown

(n = 2) n°15,24

EQ-5D

Euro Quality of Life 5 Dimension questionnaire

(n = 2) n°14,38

Neuro-QOL

Quality of Life in Neurological Disorders

(n = 1) n°34

NHP

Nottingham Health Profile

(n = 1) n°20

PDQUALIF

Parkinson’s Disease Quality of Life Scale

(n = 3) n°14,18,40

PDQ-39

39-item Parkinson’s disease quality of life

(n = 5) n°7,10,20,35,40

PIMS

Parkinson’s Impact Scale

(n = 1) n°40

SF-12

The 12 item Short Form health survey

(n = 2) n°14,20

SF-36

The 36 item Short Form health survey

(n = 1) n°40

SWAL-QOL

Swallow-specific quality of life

(n = 1) n°40

Bowel movement

(n = 1) n°24

COMPASS

Composite autonomic symptom Scale

(n = 1) n°40

SCOPA-AUT

Scales for outcomes of Parkinson’s Disease – autonomic symptoms

(n = 3) n°4,5,43

Unknown

(n = 2) n°15,30

Brief-SIT

Brief Smell Identification Test

(n = 2) n°24,47

16-item sniffin’ Sticks Odour Identification test

(n = 1) n°38

UPSIT

University of Pennsylvania Smell Identification Test

(n = 6) n°1,4,5,34,39,43

CH-RLSQ

Cambridge-Hopkins Restless Legs Syndrome Diagnostic Questionnaire

(n = 1) n°40

IRLSSG

Instrument for the Assessment of Restless Legs Syndrome Severity

(n = 1) n°4

CSI

caregiver strain index

(n = 1) n°35

deJong-Gierveld Loneliness Scale

(n = 1) n°47

MCSI

Multidimensional Caregiver Strain Index

(n = 1) n°35

Caregiver interview

(n = 1) n°21

Agonal state questionnaire

(n = 1) n°51

CGI

Clinical Global Impression scale

(n = 1) n°38

CIRS

Chronic Illness Resource Survey

(n = 1) n°20

GHS

Global Health Score

(n = 1) n°8

GIS

Global Impression Scale

(n = 1) n°51

Howard-Dohlman device

(n = 1) n°48

MNA

Mini Nutritional Assessment

(n = 1) n°40

MOS

Medical outcome study

(n = 1) n°20

MSSSS

Medical Outcomes Study Social Support Scale

(n = 1) n°28

Pain

(n = 1) n°40

PASE

Physical Activity Scale for the Elderly

(n = 3) n°7,10,43

SRRS

Social Readjustment Rating scale

(n = 1) n°28

SSCI

Stigma Scale for Chronic Illness

(n = 1) n°20

Tremor rating

(n = 1) n°4

Visual acuity

(n = 1) n°48

Unknown

(n = 1) n°15