Table 1 Assessment instruments and time points of application

 Quality of life and health status

EuroQol instrument

[20]

x

x

(x)

(x)

PDQ-8^a

[21]

x

x

x

x

 Meaning in Life

SMiLE

[22]

x

x

(x)

(x)

 Satisfaction with Care

Likert scale

x

x

(x)

(x)

 Quality of life and health status

EuroQol instrument

[20]

x

x

(x)

(x)

 Patient Quality of Life

DEMQOL-Proxy^b

[23]

x

x

x

x

 Satisfaction with Support

Likert Scale

x

x

(x)

(x)

 Caregiver burden

Zarit burden scale

[24]

x

x

(x)

(x)

Activities of daily living

UPDRS (pt. II)

[25]

x

x

x

x

Schwab&England

[16]

x

x

x

x

x

Comorbidities

Charlson-Index

[34]

x

x

(x)

(x)

[19]

x

x

x

Clinical rating/judgement

CGI

[26]

x

x

x

x

Hoehn and Yahr

[8]

x

x

(x)

(x)

UPDRS (pts. I, III, IV)

[25]

x

x

(x)

(x)

Cognitive assessment

MMSE+clock drawing+fluency

[27,28,29]

x

x

(x)

(x)

Pill questionnaire

[18]

x

x

(x)

(x)

Neuropsychiatric and other non-motor symptoms

Neuropsychiatric Inventory (NPI-12)

[30]

x

x

(x)

(x)

Non-motor symptom scale

[31]

x

x

x

x

Geriatric Depression Scale (GDS)

[32]

x

x

(x)

(x)

Basic palliative assessment

ESAS-(PD)

[33]

x

x

(x)

(x)

Supine and standing blood pressure

x

Evaluation of Implementation

x