Table 1 Specific data automatically extracted from KUMC EMR by HERON, and data that required a manual chart review

Demographic data

Subject age, race, gender, ethnicity

Date of disease onset, date of diagnosis, site of disease onset

Longitudinal data

ALSFRS-R and its sub scores, BMI, FVC (raw and percent-predicted)

Medication history

Riluzole use

Survival data

Death status, date of death