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Table 3 Most frequently reported ADLs in relation to MFM32 item

From: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

ADL domain MFM32 item Most frequently reported daily activity Reported in interviews Reported in survey
Dressing Item 4 (Pulling up the foot)A, B Putting on shoes
Item 3 (Bringing knee to chest)A, B Dressing lower body
Item 6 (Raise pelvis)A, B Putting on pants
Item 5 (Bringing hand to opposite shoulder)A Dressing upper body
Item 26 (Standing on one foot)A Dressing lower body
Mobility/transferring Item 7 (Roll from lying on front to back)A, B Turning and moving in bed to change positions
Item 8 (Lying down to sitting up)A, B Getting out of bed
Item 11 (Sit to stand)A, B Stand after a fall/from sitting on floor
Item 1 (Turning head)A Adjusting position in bed
Item 2 (Lifting head)A Lifting head to move pillow/getting out of bed
Item 25 (Stand without support)A Stand from sitting
Item 29 (Walking on a line)A Walking around the house
Item 12 (Sitting down on a chair from standing) A Sitting down when tired/unsteady
Item 24 (Standing up from sitting on chair) A Stand up from sitting at dinner table/to change position/when carrying objects
Self-care Item 15 (Bring arms up to place both hands on top of the head)A, B Brushing hair
Item 5 (Bringing hand to opposite shoulder)B Itching/scratching
Self-feeding Item 23 (Place forearms and/or hands on table)A, B Eating independently
Item 21 (Turning a ball over in hand)A, B Picking up food when eating
Item 16 (Extending elbow to touch a pencil)A, B Picking food off a table without help
Item 20 (Tearing a sheet of paper)A Opening a wrapper/food packaging
Item 13 (Maintain a seated position)B Eating while seated
Reaching, picking up and holding objects Item 17 (Picking up coins)A, B Picking up and holding small items
Item 9 (Sitting on the floor)A, B Holding objects in a seated position
Item 10 (Leaning towards a ball)A, B Reaching an object
Item 27 (Touching the floor while standing)A, B Touching the floor to pick up something
Item 32 (Squatting)A, B Picking something up from the floor
Physical activity Item 28 (Walking on heels)A, B Walking
Item 30 (Running)A, B Exercising
Item 31 (Hopping)A, B Exercising/playing sport/hopping
Item 29 (Walking on a line)B Walking
Item 26 (Standing on one foot)B Taking a step/walking
Writing and technology use Item 22 (Pointing at drawings)A, B Using a phone or other device/touchscreen device
Item 18 (Going around the edge of a CD)A, B Using a touchscreen device
Item 19 (Pick up pencil and draw loops)A, B Writing/drawing with a pen
Item 20 (Tearing a sheet of paper)B Using your hands to tear a piece of paper
Social contact/engagement Item 14 (Raise the head from the chest)A, B Having a conversation/engaging with others
Item 1 (Turning head)A, B Looking around the room
Item 2 (Lifting head)B Looking around the room
Toileting Item 25 (Stand without support)B Using a toilet independently
Item 12 (Sitting down on a chair from standing)B Using a toilet independently
Item 24 (Standing up from sitting on chair)B Standing from sitting on toilet
Performing work/school activities Item 13 (Maintain a seated position)A Doing work/schoolwork while seated
  1. A The item was most frequently associated with the ADL based on the qualitative interview data
  2. B The item was most frequently associated with the ADL based on the survey data
  3. The specific aspect of the ADL was reported in relation to the patient-friendly MFM32 item in the qualitative interviews and/or quantitative online survey
  4. The specific aspect of the ADL was not included as a response option in the quantitative online survey and was also not reported in the free-text response option by any respondents
  5. ADL Activities of daily living; MFM32, 32-item Motor Function Measure