Development of a patient-reported outcome measure for patients who have recovered from a subarachnoid hemorrhage: the “questionnaire for the screening of symptoms in aneurysmal subarachnoid hemorrhage” (SOS-SAH)

Table 3 Used PROMs to cover the identified PROs

PROs used in the PROM	PROMs
Cognitive abilities	PROMIS 8-item custom short form
Depression	HADS
Anxiety	HADS
Fatigue	PROMIS 4-item short form
Social roles	PROMIS 4-item short form
Hypersensitivity to stimuli	Adapted question from the QOLIBRI
Personality change	Adapted question from the QOLIBRI
Language	Adapted questions from the QOLIBRI
Vision	Adapted question from the QOLIBRI
Taste	Adapted question from the QOLIBRI
Smell	Adapted question from the QOLIBRI
Hearing	Adapted question from the QOLIBRI
Headache	Adapted question from the QOLIBRI
Problems with sexuality	Adapted question from the QOLIBRI

HADS: Hospital Anxiety and Depression scale; PROs: patient-reported outcomes; PROMs: patient-reported outcome measures; PROMIS: Patient Reported Outcomes Measurement Information System; QOLIBRI: Quality of Life after Brain Injury questionnaire

ISSN: 1471-2377