Table 1 Illustration of matrix coding query across different coded references and caregiver identities

Theme A.1. Factors influencing seeking care

Subtheme A.1.1. Financial factors

15 (1.15)

8 (0.44)

3 (1.50)

2 (1.00)

Subtheme A.1.2. Structural or healthcare system related factors

27 (2.08)

38 (2.11)

5 (2.50)

4 (2.00)

Theme A.2. Decision to seek care

Subtheme A.2.1. Caregiver decides

9 (0.69)

35 (1.94)

6 (3.00)

1 (0.50)

Subtheme A.2.2. Not one person’s decision to make

8 (0.62)

27 (1.50)

2 (1.00)

2 (1.00)

Theme A.3. Role of caregiver in seeking care

Subtheme A.3.1. Recognizing symptoms

17 (1.31)

6 (0.33)

0 (0)

0 (0)

Subtheme A.3.2. Coordinating care

0 (0)

3 (0.17)

3 (1.50)

0 (0)

Subtheme A.3.3. Accompanying the stroke survivor for healthcare appointments

6 (0.46)

12 (0.67)

0 (0)

3 (1.50)

Theme B.1. Service around the patient

Subtheme B.1.1. Patient choice or preference

16 (1.23)

8 (0.44)

8 (4.00)

0 (0)

Subtheme B.1.2. Dignity and respect

8 (0.62)

12 (0.67)

0 (0)

0 (0)

Theme B.2. Service with care

Subtheme B.2.1. Communication during a healthcare encounter

33 (2.54)

27 (1.50)

1 (0.50)

3 (1.5)

Subtheme B.2.2. Trust in the healthcare system

8 (0.62)

6 (0.33)

5 (2.50)

0 (0)

Subtheme B.2.3. Personal touch experienced in a healthcare encounter

17 (1.31)

9 (0.50)

0 (0)

0 (0)

Theme B.3. Role of caregiver in healthcare encounters

Subtheme B.3.1. Advocate for the stroke survivor

15 (1.15)

5 (0.28)

14 (7.00)

1 (0.50)

Subtheme B.3.2. Active participant in healthcare encounter

6 (0.46)

16 (0.89)

6 (3.00)

2 (1.00)