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Table 4 Proportion of patients with NDM requiring mental health support in the UK

From: Improving the understanding of how patients with non-dystrophic myotonia are selected for myotonia treatment with mexiletine (NaMuscla): outcomes of treatment impact using a European Delphi panel

Mental health resource

BSC – Mean % of patients requiring resource (range)

Mexiletine – Mean % of patients requiring resource (range)

Difference (%)

BSC:mexiletine ratioa

Neuropsychologist

0 (0)

0 (0)

0

1

General practitioner (mental health-related visits)

42.5 (0-100)

37.5 (0-100)

-5

1.1

Psychiatrist

2.5 (0-10)

2.5 (0-10)

0

1

Psychologist

3.75 (0-10)

3.75 (0-10)

0

1

  1. Four experts completed this question in RD2, one expert dropped-out
  2. Key: BSC Best supportive care (defined as any supportive care that symptomatic adult patients with NDM may receive that does not involve symptom-modifying pharmacological treatment; includes, for example, the use of supportive medication [e.g. pain killers], mobility aids, physiotherapy or speech therapy), HRU Healthcare resource utilization
  3. aThe ratio was calculated by dividing the mean proportion of patients receiving BSC that require a resource by the mean proportion of patients treated with mexiletine (NaMuscla) that require the resource