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Table 2 Questionnaire items

From: Long-term outcomes after surgery to prevent aspiration for patients with amyotrophic lateral sclerosis

No.

Questions

Patient/mean score

Caregiver/mean score

1

Were you proactive to surgery to prevent aspiration?

4.5

3.2

2

Are you glad you or your primary caregivers did surgery to prevent aspiration?

4

4.4

3

Have you been able to adequately talk to others about surgery to prevent aspiration?

4

3.7

4

Do you feel that you have been provided with enough information about surgery to prevent aspiration?

4.5

3.8

5

Have there been any unanticipated serious adverse events following surgery to prevent aspiration?

1.5

1.8

6

Have there been any unanticipated small adverse events after surgery to prevent aspiration?

3.25

3

7

Have there been any unanticipated significant good things about surgery to prevent aspiration?

3.75

3.5

8

Have there been any unanticipated small good things about surgery to prevent aspiration?

3

3

9

Do you think there has been any long-term change after surgery to prevent aspiration?

4.25

2.8