Transforming Parkinson's Care in Africa (TraPCAf): protocol for a multimethodology National Institute for Health and Care Research Global Health Research Group project

Table 3 Data collection tools to be administered during clinical examination and assessment

Tools and questionnaires
Clinical observations^a
Neurology assessment^a
Questionnaire on women’s symptoms^a,b
Healthcare resource use questionnaire^a,c
MDS Unified PD Rating Scale (MDS-UPDRS) [74]
Clinical impression of severity index (CISI-PD) [75]
MDS Non-Motor Symptoms Scale (NMSS) [76]
Barthel index [77]
Intervention for Dementia in Elderly Africans (IDEA) cognitive screening tool [78]
Mini-environmental risk factor questionnaire (MERQ-PD) [55]
Questionnaire on pesticide exposure^a
Questionnaire on microbiome^a
PD Questionnaire (PDQ-8) [79]
EuroQol- 5 Dimension instrument (EQ5D-5L) [80]
REM sleep behaviour disorder questionnaire (RBDSQ) [81]
Hospital Anxiety and Depression Scale (HADS) [82]
Montreal Cognitive Assessment (MoCA) [83]
PD Sleep Scale (PDSS) [84]
Epworth Sleepiness Scale (ESS) [85]
Questionnaire for impulsive-compulsive disorders in PD – Rating Scale (QUIP-RS) [86]
Scales for outcomes in PD – Autonomic (SCOPA-AUT) [87]

^aUnvalidated questionnaires developed (based on expertise) for the purposes of addressing TraPCAf research questions (see supplementary material)
^bQuestionnaire developed and adapted from the Fox insight ‘Experience of women with PD’ survey [88]
^cQuestionnaire developed and adapted from the ‘Resource Utilization in Dementia’ (RUD) instrument [89]

ISSN: 1471-2377