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Table 3 Descriptive statistics and proportion of sample with clinically elevated scores on self-reported questionnaires for participants and carer-reported measures with 95% confidence intervals. Cut scores used were taken from each scales’ published psychometric analysis were used to indicate percent of participants with elevated symptoms or scores warranting clinical attention (termed “clinically significant” within the table)

From: Long-term psychological outcomes following stroke: the OX-CHRONIC study

Domain

N

Mean (SD)

Clinically Significant –N (% [95% CI])

Post-Stroke Abilities

 Modified Rankin Scale Scorea

100

1.79 (1.27)

30 (28.6 [19.7 – 37.4])

 Barthel-3 Item Short Form Totala

99

6.93 (1.58)

 Nottingham Extended ADLa

100

47.77 (16.26)

Quality of Life

 SIS-Short Form Scaled Total1a

102

72.66 (20.12)

 SIS-Long Form Stroke Recovery Scoreb

88

71.91 (21.63)

 WHO-QoL–BREF Overall Scoreb

83

7.22 (1.65)

 ICECAP-A Totala

101

15.65 (2.90)

 EQ5D-5L Health Ratinga

99

68.61 (18.83)

Cognitive Ability

 CFQ Totalb

88

33.60 (17.93)

29 (32.2 [22.5 – 41.9])

 Cognitive Reserve Indexb

84

128.42 (19.68)

Emotional Distress

 HADS-Depression Totala

98

4.97 (3.98)

23 (23.5 [15.1 – 31.9])

 HADS-Anxiety Totala

98

5.23 (4.02)

22 (22.5 [14.2 – 30.7])

 GDS Totala

101

4.22 (4.10)

34 (33.7 [24.4 – 42.9])

Extended Outcomes

 Apathy Evaluation Scalea

101

32.36 (10.21)

41 (40.6 [31.0 – 50.2])

 Fatigue Severity Scalea

101

35.56 (15.34)

52 (51.5 [41.7 – 61.2])

 Sleep Condition Indicatora

100

23.29 (8.04)

21 (21.0 [13.0 – 28.9])

Carer Measures

 CSI Total Scorea

68

2.76 (3.12)

9 (13.2 [5.2 – 21.2])

 Informant-GDS Totala

70

5.18 (4.30)

35 (50.0 [38.2 – 61.7])

 IQ-CODEa

74

3.23 (0.63)

29 (39.2 [28.1 – 50.3])

  1. SIS Stroke Impact Scale, WHO-QoL-BREF World Health Organization Quality of Life Scale – Abbreviated, ADL Activities of Daily Living, ICECAP-A ICEpop Capability Measure for Adults, EQ5D-5L EuroQol-5 Dimensions-5 Levels, CFQ Cognitive Failures Questionnaire, HADS Hospital Anxiety and Depression Scale, GDS Geriatric Depression Scale, CSI Caregiver Strain Index, IQ-CODE Informant Questionnaire for Cognitive Decline in the Elderly
  2. aData presented from Wave 1
  3. bData presented from Wave 2